Ferritin levels: As an avid reader of... - Restless Legs Syn...

Restless Legs Syndrome

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Ferritin levels

m1946 profile image
10 Replies

As an avid reader of the many experiences posted onto this site and a RLS sufferer I have read that Ferritin levels can be a tell tale sign of a likely cause? If I recall a Ferritin level of 100 should be a minimum to aim for?

well I have just received my blood test results and my Ferritin level is 75?

I would welcome any observations. I am taking one tramadol capsule and one 0.5mg ropinirole and have been taking this drug combination for about 4 years with great success but I believe augmentation is starting to occur. I have been waking up at 4.30a.!

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m1946
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10 Replies
Joolsg profile image
Joolsg

Just waking at 4am is not necessarily augmentation. Is your RLS getting worse? When you wake up, do you have RLS or is it insomnia?

Definitely consider upping your ferritin levels to get to 100 though and ask your doctor to monitor you.

m1946 profile image
m1946 in reply toJoolsg

it's definitely the effects of rls. The legs start kicking at just after 4am in the last couple of days!

Joolsg profile image
Joolsg in reply tom1946

Oh dear

Maybe consider upping the tramadol- take another when you wake at 4 am?

Also consider taking iron bisglycinate ( tell your GP) at same time to up the serum ferritin above 100.

Madlegs1 profile image
Madlegs1 in reply toJoolsg

Which Tramadol are you taking- ER is the longacting one. May be worth trying if not already.

m1946 profile image
m1946 in reply toMadlegs1

That's interesting. I had no idea there was more than one type of Tramadol. Looking at the packet with bleary eyes at 4.21 am!! I see that they are 50mg Tramadol Hydrochloride capsules. I guess if they were ER it would have that printed on the packaging?

Madlegs1 profile image
Madlegs1 in reply tom1946

Yep!

The ER version is 100mg.

marsha2306 profile image
marsha2306

My ferritin level was 70 and my doc sent me for an iron infusion. Those of us with RLS need to have levels above 100.

As an aside, I take gabapentin.

m1946 profile image
m1946

legs started jerking at 4.21 am again must do something. Interesting that it's almost the same time each morning now for the last 4 days? I will make an appointment with the doctor regarding my Ferritin levels first & see if that improves the situation. At least I am getting 5 hours sleep!!

Nightingale-5 profile image
Nightingale-5

Recently had two Ferritin infusions, sadly no improvement as yet with RLS.

DicCarlson profile image
DicCarlson

The dangers of iron supplementation are iron overload - a critical condition. But you are so far away from those numbers that you could just start iron supplementation - Ferrous bisglycinate. Of course notify your doctor. More on the iron connection here... hopkinsmedicine.org/neurolo...

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