Cannabis for Restless Leg Syndrome

[oneeye070]

I have heard the cannabis has had success in treating restless leg syndrome. I have a prescription but have not had any luck with finding correct product, has anyone had success in this area. I would appreciate any help

Thank you

[Izzybelle22]

Dear oneeye070, What is your prescription? That is the first place to start.

[oneeye070 in reply to Izzybelle22]

very general 1 gram /day

I am located in canada

[Izzybelle22 in reply to oneeye070]

You live in Canada and I live in the USA. Thus, the problem lies within. Being in different countries, our prescriptions for the same product vastly vary which makes it difficult to pin down. Ugh!

[canadagirl1964 in reply to oneeye070]

i live in canada as well....you don't need to look to far to find it, its everywhere! ask around....do you have kids? ask them! i use CBD oil, it seems to work, although i remain cautiously optimistic. i asked a friend at work about CBD oil and i had it within a few days. my husband has MS and smokes pot whenever he has weird symptoms. it works like a charm. i hope you find success with it. i am sure you will.

[canadagirl1964 in reply to canadagirl1964]

also i can deal with my RLS during the day. i only use CDB oil at night before bed and only if my legs start moving. i have a bad hip so if i take tylenol before bed that seems to help but if i don't take tylenol my sore hip can sometimes aggravate my RLS. i REFUSE to take any other kind of drug ie. painkillers and such for RLS or joint pain.

[Hidden]

I found it to be VERY strain specific, one would do nothing the next would be great. Personally speaking I found high THC opposed to high CBD only worked quite well. Sensi Star was a good one, the indica types seemed to agree better.

What way does your prescription work?

[oneeye070 in reply to Hidden]

Thank you so much, I will look into that

Best Regards

[Bkc1777 in reply to Hidden]

I was waiting for your reply.

[oneeye070 in reply to Bkc1777]

There is no cure that I'm aware of

[Bkc1777 in reply to oneeye070]

Hi,

I found that some food triggers my RLS. I am keeping a diary to see what triggers it. Have a go at it if you like. Have you got your ferritin level checked? If low you can always give iron bisglycinate a go. I am on no medicine route now with a a strict diet. No caffeine, chocolate, fizzy drinks nor alcohol.

Stay hopeful,

B

[oneeye070 in reply to Bkc1777]

Thank you for the reply, I have found that also, my rls is day and night so it is hard to tell nothing seems to take it away, i am on mends now, not as good as i would like. Have heard about cannabis having excellent results but expensive searching for correct combination.

[Bkc1777 in reply to oneeye070]

No idea about cannabis but involuntarydancer might know. I live in Uk so it is illegal here. Sorry I can't be any help.

B.

[Cantstopwontstop in reply to Hidden]

I agree Hidden . I too have found that a high THC strain helps with immediate sensation cessation. A hybrid strain with both CBD and THC are what I prefer (like Blue Dream). I am talking about whole plant medicine. I do hate smoking it but that's what I have easiest access to. I have also used a hash oil that has been amazing. Takes longer to take effect because of oral ingestion but last all night. When I was in California last I purchased 100% CBD vape oil thinking it would be more effective (and better for me than smoking plant medicine) but I was surprised to find that it helped with movement and anxiety, but was less effective with immediate RLS pain relief. I stand by my statement that Cannabis is the only medicine that relieves my RLS symptoms immediately. <3

[Hidden in reply to Cantstopwontstop]

Yeah its like a rocket to it. I do firmly believe that I could manage my RLS and ME given sufficient quantities of cannabis and the freedom to use it when I needed to. It would be a whole lot better than oxycontin and a Dopamine Agonist!

Now if only people would elect people who have half a brain and can see the benefit of this!

[NoMoRLS in reply to Cantstopwontstop]

Thanks. I tried some higher THC level in a capsule. I'm trying to lower my klonopin dose. Having slight break through. So I was thinking going in and talk about someone about higher combo strain. Now with CLL dx it may come in handy later. 😎✌

[Steve2777 in reply to Cantstopwontstop]

Ok... I am very interested in hearing more about cannabis. I have not tried it for its medical benefits. Recreationally it has, at times, boosted anxiety so I have stayed away from it for years....that and being responsible for kids. Now my sleep deprivation is the biggest issue. Ive been spending time on the floor doing yoga stuff in the middle of the night, in and out of bed, in tears of frustration.

[involuntarydancer]

Hi, as Bkc has inferred, I use cannabis. Unfortunately (from your point of view), it does not have any positive impact on the urge-to-move symptoms associated with RLS - at least for me. I am not sure that I can recall many for whom it has a direct impact on the urge-to-move though it sounds as if Raffs has found it helpful.

I use it to help me get to sleep as I suffer from chronic insomnia which I believe is another symptom of my RLS. Nothing else works as well for getting me to sleep - especially when I am using opioids or kratom but it has little or no impact on my jumpy legs. That said, I am constrained to use it illegally and I don't have any control over what strain I get. Maybe if you could choose the strain it might work ...

For jumpy legs I find kratom very effective - also illegal here but I think it might be legal in Canada. It is well worth trying. The best strain is Red Vein Borneo but all are good for legs and the green strains work better during daytime as they are not so drowsy-making.

I would like to point out, in the interest of my good character, that I am not drawn specifically to illegal substances. It's just that cannabis and kratom have proved particularly effective for me. I suffer from central sleep apnea induced by opioids. My sleep consultant will not recommend a mask - preferring instead to insist that I stop taking opioids (I was having some success with Oxycontin for my urge-to-move symptoms). She (consultant) wants me to rely on neupro solely as she asserts categorically that it is not possible to augment on neupro. I on the other hand am certain I will augment on neupro having already augmented on mirapexin.

I am now using kratom to alternate with neupro every few weeks in the hope that this will increase the length of time for which neupro works for me.

[Cantstopwontstop in reply to involuntarydancer]

I know it seems strange to talk about it openly this way but the only way you will know the strain is if you ask when you get it. Ask your helper to ask if she/he doesn't know. Treat it like medicine. Give it the energy it deserves rather than a shameful recreational high energy that MOST people attach to it. <3

[NoMoRLS in reply to involuntarydancer]

I saw Kratom here...what is it? I'm a dork at this stuff but I want to get off klonopin eventually....

[Parminter in reply to involuntarydancer]

One year late.

Augmentation on Neupro is 'relatively low'. Relative to what?

It certainly is not zero.

And as your brain already knows how to augment, then I think you're right, it will do it again quickety-quick.

[involuntarydancer]

I should have said, I second everything that Bkc suggested - especially about checking your serum ferritin levels and taking iron (that made a huge difference to the severity of my symptoms and helps many, many sufferers - though inevitably there is a sizable minority for whom it makes no difference) - and would also suggest you check the list of substances that are counter-indicated to make sure you are not inadvertently exacerbating your symptoms. What meds are you currently taking? Could you be on a dopamine agonist that might be augmenting your symptoms?

[oneeye070 in reply to involuntarydancer]

all my levels have been checked and they are all fine

I have had this as long as I can remember since i was a child, but it has gotten worse over the years, but I have tried different remedies but i am on Teva-Levocarbidopa250/25 roughly 4 to 6 a day it has helped to some degree, but if i have to take too many it has a reverse effect.

I am looking for as alternative that may be a healthier choice

Thanks for your input

[involuntarydancer]

As I understand it, Teva-Levocarbidopa is a dopamine agonist. Depending on how long you have been on it and particularly if you have noticed your dose gradually increasing, you might just want to look into the possibility of augmentation. That might explain why your symptoms are worsening, although unfortunately in many cases they do worsen with time.

When you say your levels are fine, I presume you are aware of the latest thinking in the US - that serum ferritin levels should exceed 100 in the case of RLS sufferers. Be sure to get the actual figure - my GP tells me EVERY time I get my serum ferritin checked that it is 'fine' when in fact it has been as low as 29 which is most definitely NOT fine for someone with RLS.

[Maureen133]

Where did you get prescription from.I tried cannabis some years ago.it helped.

[oneeye070 in reply to Maureen133]

I got the prescription from my Doctor

[minuts]

Recretional user for years, (the 70's ya know) but now as rls symtoms have increased and opiates have been eliminated , (still working , too groggy) my Myrapex is the only rx that actually quells my physical symtoms. Tweaking dosages for best predictable results but no more oxys,zanax, Valium etc. for mental relief. Pot is my go to sedative. No a.m. side affects, can redose mutiple times as needed. Myrapex for phisical symtoms, hemp for my poor mind. May still not SLLEEP but reasonably comfy so not going nutty. The whole stage is set for sundown and battling the beast,no t.v. no booze(defeat s my myrapex ) no,coffee, soft music, aroma therapy,and my bong. The hemp is for a steady nod that gives me a chance of dropping off for a few. Not surefire but better than all the other pills by far.

[minuts]

Also, I'll take an otc pain/sleepaid that really gets me yawning and sleepy but only on weekends to try and get a bit of catchup.

[lorrinet]

I used Cannabis for a while before i came across the Dihydrocodeine I now take. I used it (cooked and ate it) for a couple of years, but i found that augmentation comes quite quickly and I was taking ever more until one day my son said "mum, that's enough to get four people stoned!" I also disliked being high. Fortunately for me (but not for him), he had a motorcycle accident and broke his wrist, was given Diydrocodeine, of which i took a dose and...voila! Off i went to the doc.

Cannabis is dodgy today because it's stronger than it was. Also, the effects wear off after a couple of hours and it rarely saw me through the night. Plus, my weekly visits to the corner where i met my dealer were a bit shady, and cost a great deal of money over that period.

[involuntarydancer]

Yes

[Blueeyes5265]

I wish it was legal here 😭 but this state, KY, just keeps putting us off.

They get us built up about legalization and then it stalls when they try to put it through, this year it made it to the house a long time coming, and then the state stopped it claiming more research 😡

So unfair when most of the pharmacuticals ,have horrible side effects or make your illness worse.

They won't let us vote for it, It's very unfortunate when those of us who can't take the drugs could benefit from cannabis, but are afraid of jail because they refuse to medicate you in jail,even with a legal prescription for a certain medicine.

I'm 67 years old and tired of healthy people who don't care about people who are suffering ☹️ daily and nightly!😡

I'm really ready to jump off a building some where, I'm tired of the struggle and fighting with Drs and the government, because I need medicine. The cannabis can be grown anywhere by anyone ,work's for many but it's not legal 😡

I have,gout, arthritis, fibromyalgia,RLS, insomnia,

I'm Bi-polar, chronic pain, depression and much more.

Death would be a welcome thing, I am in constant pain and have no quality of life.

[Shumbah]

Hi Oneeye

Just a thought I would mention Buprenorphine

Doctor needs to be one who has done the waiver and can prescribe Buprenorphine .

Some doctors in the USA prescribe so perhaps you can get it in Canada

I am from Australia and I had to travel to NYC to Dr Glen Brooks .

It has been a miracle drug for not just me but a couple of people on this site.

I have just received an email from a lady from this site who lives in Japan and has just started on it she will be posting shortly with her story on our site. She said it is a Miracle for her

10 hours sleep at not she feels totally normal not even a twitch

All the best

Shumbah