Restless Legs Syndrome
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Stabbing, Needle like pains before RLS kicks in

Does anyone else get stabbing pains in their knees or toes , like someone is pricking you with a needle, just before the RLS starts in one leg or the other? I have noticed it is what jerks me awake as the RLS starts up & just now, I was wide awake & felt as though someone stabbed me 3 times in the knee with a needle & sure enough, the RLS has started up.

Or maybe it's just me. Ah well, off to pace around & stretch...

22 Replies
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Yes i do!!! I know for certain it means RLS is coming and fast.I have heard it from a few others too

X

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Same thing happens to me.

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Interesting- definitely a pattern here,

Jools

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I liken it to a crab nipping lol

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How very interesting. Glad I'm not just imagining a connection Pipps.

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Joolsg,

Have you ever had your Vitamin B12 and Folate tested. Pins and needles are a sign of low B12. Check out the symptoms on the PAS forum.

J 😊🍀

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It's not pins & needles. It is literally like someone is stabbing me in one small space with a sharp needle. I have MS as well so am very aware what pins & needles is like. Completely different to what I am describing here.

My B12 & folate levels are fine.

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Hi Joolsg,

I get pins and needles in the night from the waist down when the jerks start. Doing about 10 minutes of household chores eases it and I can sleep for an hour or so before a repeat performance. The neurologist sent me for an MRI scan but my spinal cord was OK

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Hi LoisTonya,

It's definitely not pins & needles. It is in one very specific place in the big toe or behind my knee & it is like someone has a very sharp needle or knife and is stabbing it deep into one very small area. It only lasts for about a second or two and then the RLS deep seated crawling sensation comes on.

x

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If Jools means the same as i experience its not pins n needles just 2/3 quick short sharp stabs x

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Absolutely Pipps. Nothing like pins & needles.

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Hi

I have felt like someone is sticking a pin in the ball of my foot a few times. On reflection my RLS started soon afterwards.

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Yes- that's what I get. It's sharp enough to make me jump. Sometimes in my big toe, sometimes in the ball of my foot & sometimes behind my knee. I usually get 2 or 3 isolated stabs & then RLS starts up within 5/10 mins.

Jools

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You described it exactly- like a pin prick in my feet and then it starts.

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OOh, there's definitely a link here isn't there? At least 4 of us with exactly the same stabbing sensation. Bet there are more,

Jools

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Yes I'm sure there are many more. I haven't had it in the knee area yet, though. Many times a single stab in the foot, enough to make me jump up. Soon after an "electric surge" through my legs means no sleep for at least a few hours and pacing round and round the kitchen table.

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I still get it about once a week & it makes me jump too.

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Me too. I get it in the hip & know I am in for a severe session of RLS

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Thather than say 'me too', i'd hope to offer a remedy by first asking what do you drink? as urination is related to fluid intake.

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I’m confused. Not sure how sharp stabbing pains in feet, hips, knees before an RLS attack relate to fluid intake/urination.

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Food and drink can bring on rls, so as urination usually followes consumption. Knowing what you drink might shine light on the cause of the nerve stimulation.

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I acknowledge that certain foods and drink can bring on an RLS attack but as I don’t drink alcohol or caffeine and follow a vegan, gluten free, sugar free, additive free diet I doubt that food/drink is causing my stabbing pains before an RLS attack.

I just have MS and severe RLS.

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