Restless Legs Syndrome
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Well, I heard from my Hopkins doctor this afternoon about the iron infusion I had on March 10. I had thought it would be working as soon as I got it but I was wrong. He said it takes about 6 weeks to see an improvement in symptoms. I also told him I was up til the wee hours of the morning and he said not to go to bed until I really am sleepy. I was trying to go to bed at 11:30 but I really wasn't sleepy enough to go to sleep and I was laying in the bed waiting and that was a signal to my legs to start moving.. He changed my gabapentin to taking all 900 mg. at about 9:00 pm, going to bed at midnight and getting up in the morning at a certain time every day so I can reestablish a good sleep regimen and pattern. He said that the 900 mg. gabapentin should carry me through 12 hours if I don't get in bed and just lay there. I am also attaching an article I found in Hopkins web site in my next post.

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I don't think doctors get it about sleep. It doesn't make any difference with me what time I go to bed. It is after about an hour lying in bed that the RLS starts up, whether I went to bed at 8.00. p.m., 11.00 p.m. or whatever. Whether I am sleepy or not makes no difference. I can even doze off and then wake up with it later.

I hope the iron works for you, hang in there!


For us poor RLSers, we cant get that routine that easily, we have to either sleep when our RLS lets us or pace when it doesnt let us sleep. I hope you feel some benefit from the infusion sooner rather than later.

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It's very weird, but it's not the RLS keeping me up at night; have no idea what is.


I find that too quite often.

Usually trace it back to coffee , chocolate , ice cream (sugar and sweeteners) and plenty of other guilty pleasures!

Tramadol , oxycontin and vit D also give me serious insomnia. Generally these last ones decline in severity over time ( weeks and months rather than days 😢)

Something in your intake is causing this.



That's a lot of stuff to contend with! I don't take any painkillers but I do take Vitamin D in the morning.

Try not to have sugar stuff in the evening. Guilty of drinking about 2 cups of coffee during the day.


There ye are so!


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