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Restless Legs Syndrome

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RLS and Parkinson's

moonhunt18 profile image
14 Replies

What's the likelihood of one suffering from RLS being diagnosed eventually with Parkinson's?

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moonhunt18 profile image
moonhunt18
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14 Replies
Graham3196 profile image
Graham3196

From what I have been told and read RLS is not an indicator of Parkies as you age. They are related in their cause but one is not a predecessor of the other. I hope that's correct.

FLAME43 profile image
FLAME43 in reply toGraham3196

your reply seems correct to me as it is what my doctor told me

Jeanniebeannie profile image
Jeanniebeannie

Hi .well i have lately asked myself this question seeing as rls is triggered from the brain .and the nedication is much the same and jerky movements that you cant control.

moonhunt18 profile image
moonhunt18 in reply toJeanniebeannie

The medication (ropinerole) is actually the medication used for Parkinson's 😕

malcolm_one profile image
malcolm_one

Some RLS sufferers are put on parkinson medication. My Dad was taking pramipraxil for years. I'm a nurse , I noticed that dad had problems starting and stopping movements. this is known as drug indused parkinsonism. I researched other rsl medication. his face is brighter and he walks properly now.

moonhunt18 profile image
moonhunt18 in reply tomalcolm_one

When I'm not breastfeeding I take ropinerole which I know is a Parkinson's med.

Tara1974 profile image
Tara1974 in reply tomalcolm_one

This is my medication and I swear by it and I was told by a doctor it was a form of Parkinson's or from a similar family

Jeanniebeannie profile image
Jeanniebeannie

Yes that is correct .also oramipexole for parkinsons which ive used for years .sometimes im good with rls sometimes unbearable so as we dont kno why times are ok times are bad .

You will not develop Parkinsons because you have RLS. Both different conditions. It is known that people who have Parkinson's can developed RLS. Yes we take the same meds but at much lower doses. Parkinson's is because the brain cant make enough dopamine. We RLSers, have enough dopamine but it gets blocked and cant reach where it is supposed to.

moonhunt18 profile image
moonhunt18 in reply to

Thank you for the explanation!

Grammieof4 profile image
Grammieof4 in reply tomoonhunt18

I agree with elisse. I think some of the others who replied didn't quite get the question correctly.

Tara1974 profile image
Tara1974

My pramipexole 0.18mg tabs 3x a night some nights I need more was given to me some yrs back and I'm reliant on them or it'd be impossible to sleep when it starts usually I jump in the bath maybe twice if it lingers for hours on end if my meds don't kick in in time....I was told it's a member of the Parkinson's family how correct I don't know but I'm not going argue with a doctor lol .....I know anyone who has it severe I feel for them because my life is horrendous with it

FLAME43 profile image
FLAME43

totally agree with your view prampexole is my life saver, unless you have experienced the horrendous sensations of rls you wont know how desperately this medicine is needed

Retren profile image
Retren

I am posting this for what it is worth 15 Feb 2017 it might help someone I have landed in the ER overnight plus umpteen tests for my heart since November. Awful symptoms like a very severe over caffeinated attack .a couple of weeks ago I finally wondered if it was anything related to my having every morning for breakfast a toasted bialy.(a type of bread roll)and eliminated them.Since which time my symptoms thank goodness cleared and added bonus my Very severe RLS.I came to the conclusion it was probably due to gluten.although have not had problems before .Age seems to produce unpleasant problems.I do hope this might be helpful to someone.as you all know anything that is of assistance is welcome.

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