your op

[stan38angler]

hi pippins hope your getting lots of bed rest?? I was baffled by how soon you where back home after what must have been a major op!! was it a bed shortage ??  has your hubby got over his fall??   by the way I like your sense of humour!! well think that's about all for now  best of luck STAN xx .

[Mum27]

Nice that you are home so quickly hope you are ok and your RLS did,nd give you any problems x

[nightdancer]

Pippin is resting today. She NEEDS it. I, too am surprised that she was sent home soooo soon after this major op!! In the US the average hospital stay is a week or MORE after this certain surgery. grrrrrrrrr I know she appreciated the good thoughts.

[Pippins2 in reply to nightdancer]

Unfortunately not Nightdancer, there are many members of the coccyx support group from the States who were actually discharged from hospital on the same day as having the op,some within 2 hours! !! Those in Australia seem to stay in the longest, more like a week, and next day seems to be usual for UK, I have never come across an op that has so many variables from pre op instructions right through to post op directions. I think it is because it is still quite rarely performed, x

[Pippins2]

I am doing ok thankyou Stan,being unable to sit is a  damn nuisance though! !My legs are behaving so thats a plus,x

[stan38angler in reply to Pippins2]

hi pippins  hope you are getting over your op and keeping well ??? you seam to know a lot about RLS so could I run something by you?? as you know I am new to the forum but ive noticed lots of others saying about the pain they are getting I have the jittery legs which is the main known thing of RLS !!! but no pain ive read up a little about the thing we are cursed with but no mention of pain I have also noticed some are saying they are getting RLS in other parts of their bodies!! I will more than likely get hung drawn and 1/4 qtr for asking is this possible??  if so why is it still called RLS??  to all that picks up on this post  be gentle !! with me    best wishes STANx

[Pippins2 in reply to stan38angler]

Hello Stan,I am doing ok thankyou progress is slow, good days and bad days but its still early days! ! To answer your first question some people do get pain with their RLS and some don't Then again we all use different descriptions to describe our symptoms so it is difficult to know exactly what someone else is feeling. I do get some pain if I don't move my legs when the sensations are strong .Sort of like the pressure builds up and then it gets to a pitch where it kind of explodes but generally for me its the awful got to move sensations. Only recently has pain been included in the criteria and there is no doubt that some people certainly experience pain as a symptom but the urge to move must accompany that pain for a RLS diagnosis. Some describe it like electric shock . Mine has got more painful as I have got older. Your second question yes as I can testify myself you can definitely get RLS in other body parts most commonly the arms.It has been suggested that Restless Limb Syndrome would be a better description! ! I only started getting it in my arms when I suffered augmentation from the Pramipexole,in fact symptoms moving into arms is a classic warning sign of augmentation. Some get it in other body parts too as the condition progresses. Since I stopped using the Pramipexole I rarely get it in my arms now.Interestingly for me is very painful in my arms like I have done a work out with weights. So the answer to both of your questions is yes it can cause pain and yes it can be in other parts of the body. My absolute worst spot is my left foot  actually! ! Take care. .Pippins2 x

[stan38angler in reply to Pippins2]

hi pippins2 many thanks for your reply it has cleared things in my head in so much as that I am sure I am going into augmentation with [prami] am having pains in my shoulder that ive had before and put down to frozen shoulder!! got to see my [doc] on the 20th about the results of my [tummy scan] it seams I have a couple of enlarged tubes next to my [prostate] that be what caused my leg/foot to be swollen I will ask him to take me off prami    will leave you know how I get on   STANxx