I want to SCREAM! R... - Restless Legs Syn...

Restless Legs Syndrome

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I want to SCREAM! RLS is at ALL TIME HIGH........

3420 profile image
3420
10 Replies

I don't have any downtime unless I'm sleep. I've noticed very prominent in my right leg - in same exact area. Also notice that The times when muscles raging, I get extremely lightheaded. I'm scared.....almost as if one particular muscle resting on a nerve.

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3420 profile image
3420
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10 Replies
Pippins2 profile image
Pippins2

3420, some people do have RLS in one particular area whilst for others its more widespread. Muscles don't really have anything to do with RLS as it is Neurological not muscular.I am wondering if there is something more going on because of you feeling lightheaded unless that is a result of the tiredness. What treatment are you on for your RLS?

3420 profile image
3420 in reply toPippins2

I'm thinking it's extremely tiredness....no sleep. I was taking pramipexole than switched to carbidopa/levodopa - couldn't function with either med....

Pippins2 profile image
Pippins2 in reply to3420

3420, so you are not on any meds now for your RLS?

beady3 profile image
beady3 in reply toPippins2

Hi Pippin how are you doing ,hope last hol was good,what meds are you on now and does it keep rls at bay. I am doing ok except still get tiered ,I have only had one bad night in the last month. What do you think about iron tabs I was tempted a while back but didn't take any. Hope Freddy is ok,merry Xmas to you and thanks for your help over the year June xx

Pippins2 profile image
Pippins2 in reply tobeady3

Hi Beady! I am doing ok thanks on and off the patch.Glad you are doing ok still with the Tram . Freddie has to have allergy testing as he keeps on getting a rash ....more expense.I enjoyed my holiday thanks , ready for another one now! On the iron, its always best to get a ferratin iron test before taking iron supplements. Getting ferratin

Up to over 70 ish does help some people but unfortunately is not the answer for us all.I got mine up to over a hundred and it made no difference. Mine is genetic pure and simple.Always worth getting it checked out though as it helps a lucky few.Wishing you a Happy Christmas , I have my daughters baby to look forward to, due February 6th .Kim x

beady3 profile image
beady3

Sorry you are having probs,are you sure it's rls because you don't mention all the moving about you have and the nights in and out of bed Have you got a trapped nerve

3420 profile image
3420 in reply tobeady3

What is a trapped nerve? I have an idea though.....Thank you!

beady3 profile image
beady3

Hi 3420. A trapped nerve is when it Herts al the time nothing like rls.

3420 profile image
3420 in reply tobeady3

Thank you! I looked it up after I replied to you. :-) No, it's not a trapped nerve. I think my RLS is just getting worse.....

beady3 profile image
beady3

Well if it is rls all I can say is keep going to doc Pippin is very good she helped me many times,I had all the Dophamine tabs and am now on Tramodol getting on well try those, good luck to you

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