Hi everyone, so last night was night number 8 of me weaning off dopamine meds.Just a recap , I was doing well on Neupro patch until it started affecting my skin due to an allergy to the adhesive so a couple of months ago I changed to Ropinerole which made me feel ill.I saw the Neurologist and came off Ropinerole , he gave me 2 meds to help me plus 2 sleeping tablets, All went well on the sleeping tablet nights but other nights have bern tough .The 2 meds he gave me to help with my withdrawal are Clonazepam and Clomethiazole.Tried the Clonazepam a couple of nights but they didn't help at all and I paced most of night .Last night I tried the Clomethiazole. Says can take 2 or 3 so I just took 2..
Around 11pm the RLS started.Over last couple of years my left foot and left leg symptoms have changed from creepy crawly urge to move to terrible painful symptoms which comes in waves.My right leg and my arms continue to be creepy crawly.The Clomethiazole was not enough to let me sleep through the pain and urge to move was too strong for it.
Now here is the weird bit , I remember pacing and bumping into walls and doors etc and sort of 'coming to' and finding myself in a different room and once in the street, I eventually must have dropped off to sleep but what a site I woke up to.In this pacing half asleep mode I had done stuff I had no recollection of.
The kitchen was smeared in yoghurt, all over the floor and walls, I had lined up slices of cold meat on the worktops.My pj bottoms and one sock were missing later found in the toilet bowl! I had taken down my mothers day cards and collected up all the pens in the house.Goodness knows what else I fid , I have no memory of doing any of this
Sometime during my strange behaviour I had stuck on 2 Neupro patches on my arms, this would not have been easy as they are well tucked away out of my grandchildrens reach.
Needless to say I feel hung over this morning and will not be taking any more of those tablets! I will try again with the Neupro patch and apply steroid cream to my skin as soon as I take it off,
So just a warning about Clomethiazole to you all and do not underestimate how hard it is to come off the dopamine meds.
Lv Pipps x