Hi, I'm new here and have read quite a few posts tonight which I've found really helpful. I was searching the Internet in desperation, yet again, to see if I could find something different to help me relieve my symptoms and came across RLSUK, don't know why I've not seen it before. I blame it on sleep deprivation!
I guess I've had RLS for many years from being a young teenager and it being put down to 'growing pains' then I was always told to stop fidgeting and keep my legs still and long car journeys were uncomfortable to say the least. Funny really as my Mum suffered with RLS but it was never suggested that that was what was might be wrong with me. However, I'm not sure that in the early days my Mum was diagnosed with RLS.
RLS particularly bad tonight, and yes, even painful; how my husband sleeps next to me while I'm fidgeting and jerking and tossing and turning I do not know. But it doesn't last for long because I get up and pace backwards and forwards, vowing 'not to go downstairs tonight.' As you can imagine that only lasts so long too, well I don't want to make too much noise, so downstairs I go. Even Molly, our dog knows the routine, I often feel like taking her for a walk, but well it's a bit late and a bit dark, not that she'd mind! And it would no doubt do me the world of good, so instead I pace downstairs, sometimes making good use of the time other times just waiting for the time when I may be able to go back to bed. Or will it be one of those nights when I get no sleep at all......please, no. My GP hasn't prescribed any medication for this, saying that the morphine I already take should be suffifcient! I was prescribed morphine following spinal surgery but only take it when I'm absolutely desperate as I don't want it to become a med to which my body gets used to and consequestly is ineffective. If I take a sleeping tablet I feel like a zombie the following day and find it hard to function properly,generally feel rotten, but at least I have had some sleep. In the past when I've not slept for long periods and found it hard to stay awake during the day I've resorted to 'power drinks' and caffeine tablets. They've helped and haven't seemed to make the RLS any worse, but it's just a viscious circle.
Off I go to wander again. Thank you for 'listening.'
(Oh for a 'normal' life )