Hi! I am new here wanted to introduce myself to the group! I have been through a terrible 2 years period of diagnostic studies with multiple mis-diagnosis's including Fibromyalgia, Depression, Chronic Fatigue, Rheumatoid Arthritis and a whole host of Practitioners who thought I was plain crazy. I finally went for a sleep study and found I have RLS, REB Behavioral Sleep Disorder and Narcolepsy. After doing a ton of research (I am a nurse as well) I found that 70% of those diagnosed with RBSD go on the develop PD. All of the above DX's are related to low dopamine and/or ineffective dopamine receptors. If you have been diagnosed with RLS and are NOT receiving relief with the RLS meds you might want to consider the possibility that you could have RBSD in conjunction with RLS which is very common. Since my diagnosis a month ago, I have been taking 1mg Clonazapine at bedtime, Placing a 1mg Neurpro patch 1 hour before bedtime and taking 250mg of Nuvigil (for Narcolepsy) every morning. It has given me my life back! If you have vivid dreams, wake up to find your bed looks like a wrestling match took place in it and you are VERY sore in the morning like someone wailed on you with a baseball bat I would love to hear from you as those are symptoms of RBSD and usually, if you have RBSD you also have RLS. Additionally, you have a higher chance of developing PD. All of these diagnosis's are related to dopamine issues. Additionally, Narcolepsy does not always present itself as falling down in the middle of a conversation into a sleep state. Most people with Narcolepsy do not fall down. They just suddenly feel really heavy, like their body is made of lead and might have some slurred speech or loss of fine motor coordination and seem to 'space out' even though they are still cognizant of what is going on around them. It took me two years to get to the bottom of what was going on with me and honestly...had I not just kept pushing and pushing for the root cause, I would still be on fibromyalgia meds and anti-depressants seeing a practitioner who thought I was a drug seeking loon. I hope my experience can help someone else who is still searching for answers as to why they are still having issues despite the prescribed medications for their RLS diagnosis.
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