Bedcheck

Hope you're all fast asleep with sweet dreams. Something to read with that morning cup of java.

news.vanderbilt.edu/2014/04...

[Jumpey]

Interesting. Hope they come up with something useful.

[Annieapple]

I slept very well Terravade thanks to Syndol (combination of Syndol paracetamol & a muscle relaxant). What an interesting study on the role of manganese . At least someone out there is trying to help us!!! Thanks for passing that article on.

[Hidden in reply to Annieapple]

I know it is interesting about the manganese. Did a little more research on RLS and manganese but couldn't find much of anything. The article doesn't say we're deficient in it and maybe just the opposite. I did find articles on Parkinson's which indicates that their brains have too much manganese as well as too much iron and way too little dopamine. But RLS brains are just the opposite, pathetically low iron levels and somewhat higher dopamine levels - higher than the average non-RLS person.

[Hidden]

I feel like they are trying to do too much.. they talked about burning, stinging - that is neuropathy , I would think or at least that's what they are treating me for because I have that going on... then the need to keep moving my legs is my rls.. maybe it's the way that it was presented but I feel like they better decide which is which.

[Hidden in reply to Hidden]

Well Yikes, I have my own theory on RLS and I believe that in the not so distant future RLS will be as treatable (not curable) as Type I diabetes. They need well timed daily insulin injections because their pancreas is not producing it and we need well-timed daily iron (injections?) because our brains aren't able to call it up from our stores, healthy or otherwise. Someday, maybe with stem cell replacement, science will be able to cure the diabetic's ailing pancreas. And someday, in the very distant future, science may figure out why our brains are such poor iron collectors.

[Hidden in reply to Hidden]

RLS isnt all about iron or lack of it.

[Hidden in reply to Hidden]

Hi , I was interested in you being treated for neuropathy. For some months I have gone on about burning /stinging/painful pins and needles in my left leg and particularly my left foot(my left foot is almost a member of this forum in its own right ! ).My GP thought it seemed to be peripheral neuropathy and I am seeing a neurologist next week.However thete was still the urge to move it and many hours spent shaking the leg and pressing my foot into the carpet to gain a few seconds relief, So much so I have ended up with capsulites at the base of my toe! The sensations/pain in the affected leg /foot (which are only from the calf downwards) are completely different to the RLS in my other leg amd occasionally arms,

Now this is the interesting bit, since starting on Neupro patch and getting amazing relief from RLS the so called neuropothy symptoms in the affected leg/foot have completely gone! This leads me to the obvious conclusion that it was not neuropothy at all but a variant of my RLS symptoms.

This makes sense as these symptoms only started when I weaned off mirapex due to augmentation. I know you have said you still have the neuropothy without the urge to move so maybe yours is a seperate condition altogether but just thought I would tell you of my experience incase you hadnt seen my old posts..kim

[Hidden in reply to Hidden]

Sorry didnt say this was for Yikes x

[Hidden in reply to Hidden]

Thank you pipp1ns. I certainly did take notice. RLS makes me want to move my legs constantly. Neuropathy has stinging, buring, numbness, pain, tingling. It doesn't respond to movement. It doesn't respond to any kind of dopamine medicine. It does not come on at rest. The situation can improve at times but it always returns randomly and frequently.. I have had some luck with gabapentin and then when that treatment brought on weight gain, I stopped, lost the weight..and started on Lyrica..It's a battle not to over-eat on that drug as well..it brings on an appetite as much as the gabapentin did however, I counteract with keeping veggies and fruits, nuts, lifesavers handy and ready to consume. I am only human though and if I really want blueberry pie at 2 am, I will find a way.. haha..

[Hidden in reply to Hidden]

Thats interesting because as well as starting Neupro I started on lyrica at same time! Could this be what is helping "my left foot" I now wonder.? My GP started me on it as he thought it was neuropothy x

[Sue777]

Thank you for the link. Great that this research is starting. Let's hope that they find a cure for us. X

[Hidden in reply to Sue777]

Or a consistently reliable treatment.

[jimeka]

Thank you that link was very interesting. I have had Rls for over 30 years and it gets worse with age, so I hope and pray that they can find a cure with the manganese . Thanks again for sharing, cheers Jimeka

Ps I get pain with my Rls, it's not pleasant

[Hidden in reply to jimeka]

Yeah, very unusual study, I think they're saying we have too much manganese, or we don't utilize what we have properly?