Back to doctors.

[restless1973]

These new pills have done no good at all. Hardly any sleep for a week, hallucinating again, and i think its spreading to my arms. Just want to curl up in a ball and sleep forever.

[arjay]

OMG I really feel for you. I can't suggest anything to help. You've probably heard all the suggestions by now. Just been strong. Go and have a soak in a hot bath. Might help you de-stress for an hour or so. Take care x

[Cma9905]

Don't know which ones you have tried but I am on Pramipexole and that helps me. Obviously everyone is different. But I also found if I have to take higher dose steroids for a day or so that makes my legs worse.

[restless1973 in reply to Cma9905]

Hi i am currently on 4mg ropinorole, 30mg of codeine, 75mg of dolusepin, and 100mg of pregabelin. Hopefully it may do the trick.

[Hidden in reply to restless1973]

Restless you know that the anti-depressant you are taking could be making your RLS worse... How long have you been taking the 4mg Ropinerole, as you might be having augmentation from that med.

[restless1973 in reply to Hidden]

Ive been on ropinorole since i were diagnosed. Going to mention that to doc when i see him next.

[Hidden in reply to restless1973]

Ask if you can change to a more RLS friendly anti-depressant aswell. rlshelp.org list the anti-depressants to avoid and gives the RLS friendly ones. Look at the treatment page and scroll down til you come to it. If you are having augmentation on the Ropinerole then you need to change it. Getting our meds right and the right doses is trial and error. I hope you have a doctor that understands augmentation as most have never heard of it, and just want to keep increasing dosage when we say its not working. This applies to the dopamine meds as in Ropinerole, Pramipexole and the Neupro Patch. The doctor ups the dose and for a while everything is fine, then that wears off and RLS comes back worse than ever.

[mitziblue]

I feel for you sweetheart!!! Keep going back to the doctor and let him or her know that you are at the end of your rope. They should be able to give you something for your suffering that works, but since everyone is different it may take awhile to find the one that works for you. I hope you can find something very soon!!! xxx Mitzi

[restless1973]

Thank you for being so kind. Had a good nights sleep, but now i want to sleep more during the day lol. But hey! I can cope with that.xx