I hate RLS

[catherinem13]

So on Thursday I leave to go to music festival until Monday which involves camping with my friends and I am DREADING it. My RLS has been so bad every night recently and I don't know if I will be able to handle sharing a tent with my friends who do not know about my RLS. At the moment I really do not want to go even though this is something I would usually love.

[Hidden]

Hi if you dont tell your friends it will be even more pressure on you which will make you more anxious . Hopefully you will be able to move around during the day so I would tell them you have a neurological problem that affects your sleep.You could explain that you might het up anf down durimg the night and not to worry you're not sleepwalking! Is it a long journey to get there? X

[catherinem13 in reply to Hidden]

Okay yes I will tell them! And no it's only about 2 hours max leaving at 11am which is an okay time for me x

[Hidden in reply to catherinem13]

Its your choice but if it was me I would, hope you enjoy it, try and get a spot to sleep near the entrance to the tent so you are not climbing over people.! Have a good time, let us know how you go on.Good luck x

[BobM]

Hi, I missed so many 'events' because of my RLS and the worry of disturbing others. I regret it now so ry to go, explain to your mates and hope they understand, sometimes I have had to explain several times and be fairly expressive to get it across as RLS sounds so dull and stupid!!! My real mate (as always) came thru!!!

So try and not be me, you are so young keep fighting and living as much as you can force yourself to do. Enjoy the festival, Reading was always my favorite!!

Kindest

Bob

[lorri214]

I sympathize with you. One time I went away with my sisters for a weekend. My RLS was acting up during the night, so of course I was up and down. We were all in one room. My sisters saw what RLS was like and never imagined it was so bad. So, they understood a little better.

[kdun]

What kind of drugs does your Dr. have you on? I tried so many different ones and nothing worked for me. I am now on a narcotic drug ( Percocet) Oxycontin and so far it has been GREAT. I take three pills a day and as long as I take them at the same time each day I am pretty much pain free, they are a godsend. Without them I would not be able to go anywhere, especially overnight because all I used to do was walk the floors and cry because the pain was so bad.