Has anyone heard of the drug Lacosamine.Trials are showing good results at the moment for RLS. It is currently used in Parkinson's

[Conchita]

[Hidden]

Hi, i havent heard of Lacosamine, so i went to look it up, and the only thing that showed in my search was Lacosamide. Can you say where you saw the info on that med. ??

[Conchita in reply to Hidden]

It was a short piece in my daily paper yesterday UK.However it is Lacosamide. Sorry about the confusion.I don't have any more information but will try and find out more.Happy and peaceful New Year.

[Hidden in reply to Conchita]

Ah, right, the info i found for Lacosamide says its a anti-convulsion med. What paper was it in, a local paper or national. Interesting that you found and read it tho and let us know on here. Anti-convulsion meds are used for RLS, but just not heard of this one yet.

[Jaynielynne in reply to Hidden]

I am seeing a lot of information on the drug but not the drug and RLS.

It is a costly drug. I haven't found a dosage for it if it's taken with RLS.

[nightdancer in reply to Jaynielynne]

There is no dose listed/established for RLS because it is not approved for RLS in the UK or in the US. In the US we can play with meds more off label uses, but Lacosamide is an anticonvulsant that is to be used in conjunction with other anticonvulsants to help control seizures. It is only in preliminary trials, and the approval for use in Diabetic nerve pain was overruled in Europe and the US. It is on the same idea that if your blood pressure is too high, for one example, they add another to boost the first one and that is how Lacosamide works as far as approved uses. IF Gabapentin or it's brand name Neurontin in the US, was pulled twice in the US, with the European Alliance, I hate to say, there will only be a few people that it will actually help. itself, if it does get approved, is probably not going to do it and it is a loooong way from being approved, since the approval only puts an extra med that has many similar qualities of drugs already approved for nerve pain and epilepsy on the market. What is the name of the paper and the article please?

[tremors1 in reply to nightdancer]

I take gabapentin and amatryptline tablets at night, I am riddled with osteo/rhumatoid arthritus and this knocks me out, great.

[jigglylegs]

I am very familiar with lacosomide as a nurse I have patients taking it although I have never heard of it used for RLS. Will try and do a bit of digging to see if I can find any info or research recommending it.

[Hidden]

Conchita said it read Trials for this med. so it wont be on the market for RLS, yet. Would love to know what the newspaper said tho.

[dekker in reply to Hidden]

I suppose it is another one of the anticonvulsants already used in RLS and probably it is more of the same thing and nothing spectacular in my view

Wynia

[magggzzz in reply to dekker]

I take clonazepam which is an anticonvulsant and the only thing that works for me. The problem with it is that I've got too used to it and I need to take more and more to get the same effects. If there was something else that would do the same thing then that might work for me. If it was expensive then at least I could have a little clonazepam holiday. Apparently your body starts producing an enzyme that stops the clonazepam working efficiently or it metabolises it too quickly or something like that. I am getting close to the stage where my GP just wont want to prescribe me the amounts I'm going to need to have an effect on the RLS.

[nightdancer in reply to dekker]

it's a little different, but basically just a boost to other anticonvulsants. Nothing new though. See my post above, especially the part where the approval has been pulled twice since 2008 in the US and with the European Alliance

[bvlgari]

It was in the daily mail one day this week Elisse,my mother in law has cut it out for me,she said trials are being done in Spain.

[Hidden in reply to bvlgari]

Thanks bvlgari, is it possible to say on here, what it said...??

[tremors1]

I have taken this medication to help with arthritus, it did not suit me, it made me sick, but I know a lot of people who swear by it, guess its a case of try before you buy. Hope you get relief soon. My husband has sufferred with rls for over twenty years, g.p.s do not want to know.