Does anyone else feel that all the sy... - Restless Legs Syn...

Restless Legs Syndrome

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Does anyone else feel that all the symptoms of rls are bearable but the sleep deprivation is disabling.

helmut profile image
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helmut profile image
helmut
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definately not in my case, i get very painfull rls, then that kicks of everything else, osteoarthritis, and sciatica really bad, so if i can calm down the rls, im still in pain with the other stuff, then shattered because i cant rest, that in its turn sets it all of again...dont you just love roundabouts !!!!

I hate the symptoms of RLS, myself i dont find them bearable, last night my legs were really painful. I didnt know what to do with them, until my med kicked in and calmed them...Altho i hot bath helped to relax them before i went to bed...took some of the pain away while waiting for the meds. to take over. The sleep deprivation is on a equal i think...both are enough to send me nuts...

nightdancer profile image
nightdancer

Definitely NOT in my case, either. BOTH are as disabling in my case. Sleep deprivation causes all kinds of problems, and they are all disabling on many levels, some not as bad as others. The feeling that we are sleep deprived is a 24/7 feeling, and it depends on how often your RLS attacks, and how severely it does that would make us feel worse about one or the other. BUt, I would say both are equally as disturbing and unbearable for me. But, I think I get what you are trying to say, helmut.

eileen49 profile image
eileen49

I have had two bad nights but usually I am OK if I time the meds right and I dont know why there are good and bad nights, it is infuriating, what do I do or eat that makes some nights worse than others or is it just the timing of the meds ???

We need more research on this condition even if just to help the next generation !

bambisoloved profile image
bambisoloved

I am on Pramipexole for RLS and this medication helps a little but doesnt get rid of all the symptoms but it is bearable. For me insomnia is the worst thing i have to cope with. I am tired of being tired all the time. Sleep deprivation has effected my concentration, memory and mood so i feel insomnia is more disabling for me . Which is more disabiling depends on what your individual situation is as other comments prove. No dout before i started Pramipexole i would have said RLS was more disabling.

RLS is causing a whole chain reaction of things to go off on me. It starts

with severe sleep deprivation, a screwed up sleep pattern (because my

mind gets used to being up at 2am) my pain level increases largely

all over my body, I can't think clearly, pay attention, speak sharply

at times and feel generally ill towards others.

At times I hate my legs! I get crazy ideas after I go through my usual

routine to try to lessen the urge to walk, move. I drive my husband

crazy and cause him to be angry because I cannot stay in bed at

night...(every one of you knows how that goes)

Medical symptoms are starting to show..my blood sugar is up..my

blood pressure is up and the meds make me gain weight I think.

I am on Pramipexole. I have changed nothing about my diet...

and yet I gained 10 lbs since starting it 3 months ago. (I'm mad

about that too) I am picking up walking a few blocks further to

try to counteract the weight gain but even doing that for the past

month hasn't made a difference. I walk 6 days a week for a mile.

(I have RA, that's far for me)

I disagree with you in my case..RLS is the main issue that is controlling

my life right now. I can't get on top of sleep presently. I took 5 mg of

Vicodin and I didn't sleep tonight. I have 2 pills left for the entire month.

in reply to

yes me to, ive gain weight with the mirapexin, cant shift it no matter what i do !!, and for me the rls sets everything else of, i have osteoarthritus, in my lower back, feet ,neck, and hands, and very bad sciatica.... so... rls starts, i have to stand and walk, so then my feet and my back start, they get worse so i end up holding on to furniture, back of a dinning chair most likley, that sets my hands of....your getting my drift now i think :( then to top it of i feel my blood pressure going up, and just to really finish it of, the sciatica starts and thats wicked urghhh,... then maybe the rls will calm down...so now im tired but in to much pain to sleep !!! so another round of pill popping, then my tummy starts, then its time to get up, and im shattered , no sleep, n pain upset tummy, and a very bad mood.. so yes i disagree with you...sorry...lol..... have to laugh or i cry :)

Darcy profile image
Darcy

Yes...bearable is perhaps the wrong word, tolerated I think sums it up.

As for sleep deprevation, yes that is unbearable. Lack of sleep can change your habits (lifestyle), problems with disturbing wife/partner, suddenly falling asleep (BIG problem if you are at work), need I go on?

thedragon profile image
thedragon

I can cope usually with the lack of sleep even though I know its not physically and mentally a good thin to not get enough. But the rls symptoms just completely take over everything. apart from the pain and irritation it gets into my head and soul and i get so bloody annoyed, angry and frustrated!!!

I can usually get enough sleep, just about, with Pramipexole. But what really upsets me is the fact that I can't relax in the evening. I just want to be able to sit and read a book.

A night of pain and irritation can make me pretty ugly the

next day as well.. Everyone notices that I am a little more

annoyed by things and less receptive to people, stimulation,

and I seem quite edgy with others.

I discovered that taking a few seconds longer to reply or

to say anything really does help. The less I say besides

"last night was a rough one" the better off I am.

I tell other's that I honestly don't mean to be unfriendly...

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