I don't know what any of the medicine... - Restless Legs Syn...

Restless Legs Syndrome

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I don't know what any of the medicines are. Can I get some in the USA?

Adamjohn profile image
11 Replies

Hi. I'm Adam. I live in the USA. I am looking to start up on some medications.

Someone recommended this site to me to help figure that out. I don't take

any kinds of medicine. I have RLS 10 nights a month or more. What's a good

medicine for RLS. I can't be tired on it.

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Adamjohn profile image
Adamjohn
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11 Replies

If you look at this website which is the best to look at rlshelp.org the treatment page gives a list of ALL the meds which can be used for RLS, Its a USA based site, so even better for you. Hope it helps.

Adamjohn profile image
Adamjohn in reply to

Thanx. I will have a look.

bill54321 profile image
bill54321 in reply to

USA Gabintine CAPSULES Bris\tish PILLS> Make sure Doc know difference..Importance for why you take either,

Jaynielynne profile image
Jaynielynne

I asked my doctor if there is medicine for rls, He told me no cz they

all lead to augmentation. I don't wan to have to take pills. I want to

find out what to eat to help the symptoms.

Jaynielynne profile image
Jaynielynne

Adam, why do you want to do that. You don't have rls 21 nights of the month.

I get rls 28 nights a month I just go to bed earlier. I don't sleep but I still rest.

Look for no drugs first. Food is your answer.

Adamjohn profile image
Adamjohn in reply to Jaynielynne

It affects my attitude at work the next day. Food? I guess

you don't know how much I eat then. thanx

in reply to Adamjohn

Hi Adam, first how much do you know about RLS...?? There is Primary and Secondary RLS. You need a doctor who knows about and understands about RLS, that can be hit or miss finding one who does. SOME people find by changing what they eat can help them, BUT if only that worked for all of us. There are some medications and that includes OTC ones that can make RLS worse, some food and drink can make RLS worse. You will see that on the website i said for you to look at. I will send in some info on Primary and Secondary RLS for you to read. Take as much info along with you to your doctor, some doctors need educating about RLS. As your RLS is only mild at the moment, meaning you are not having it 24/7 then i would stay away from the dopamine agonist pills for now, maybe something like a small dose of codeine would be better, for the nights when you have RLS. I am not an expert, and this is just my opinion.

Walnut32 profile image
Walnut32 in reply to

I agree you need to check with a doctor, hopefully a good one who understands RLS. I would suggest a neurologist unless you are certain a gp is very good with RLS patients. You seem to have a mild case, but that likely will get worse with time. I don't think self-analysis is substantial enough for you to determine meds or foods you need. And realize you may need to experiment with different meds to find the one that works for you, which requires time for a patient to experiment with.

Here is the info for you for Primary and Secondary RLS. the more you read about RLS, the better you will get to know what will help you Knowledge is power. :)

sleepfoundation.org/article...

Rubylane25 profile image
Rubylane25

Hi Adam

I have had RLS all ny life and have reied many drugs. Most may make you tired at the beginning but drugs react differently on everybod. If you can find a drug called mirapex or pramapexole for me it works great. You can take a low dose depending how severe your rls is. You can even try extra stength tylenol which is what my sister ues and it helps her. I believe all of the diferent drugs used can be found in the U.S. Requp is another that a lot use. It is always a good idea to get your GP to recommend you to a good neurologist who specializes in this type of chronic dondition.

nightdancer profile image
nightdancer

HI, Adam. I am from the US. Before you do anything, look at that eb site that Elisse sent in. It is based in the US. I am in The US, so I can help you with ANY med issues you wnat to discuss. No one med works for everyone, and if it is affecting your attitude at work you are RIGHT to want to know more. RLS is progressive, so 10 nights a week could turn into every night if you don;t start researching now and asking questions. Elisse also mentions Primary and secondary RLS. SOME people have some luck with the foods to avoid list on rlshelp.org, also see drugs to avoid on the treatment page, plus the ones to use. I have had several groups for RLS and sleep disorders for well over a decade, and you can PM (private msg) me by clicking on my name. I will give you my email, but I don;t wnat to put it out in public here, of course. If you are interested, let me know. Not trying to steal you from this group, but you might do better in a US based group, instead of UK. Lots of good people here, but meds have different names in idfferent countries, and some are not available in the UK. As for the person who says that all meds cause augmentation, that is really only the dopamine or Parkinson's meds that are used for RLS. They only work for about a third of RLSer's, but if you look on that web site we gave you, it will show you what else is out there. You can also email the doctor wh is an rLS expert who maintains that web site. he has helped me and many people over the years. I have primary RLS, it is inherited, so no amount of adjusting my own personal diet has ever worked, except no caffeine or sugar beofre bed time. Others have different stories and you will get lots of different answers. when RLS starts affecting your attitude, you know you need help.

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