Severe: Dr. Peterson - On Severely Ill... - Ramsays Disease

Ramsays Disease

567 members470 posts

Severe

Ian123 profile image
9 Replies

Dr. Peterson - On Severely Ill Chronic Fatigue Syndrome Patients

simmaronresearch.com/2015/1...

Written by
Ian123 profile image
Ian123
To view profiles and participate in discussions please or .
9 Replies
Effort profile image
Effort

follows on with

youtube.com/watch?v=bAbK8B6...

and

youtube.com/watch?v=t0jqrhJ...

Cloudedout profile image
Cloudedout

Tour de force of information.

CheshireKatz profile image
CheshireKatz

Measuring the severe because they cannot get into clinics is a problem and not funding Ron Davis researching this group makes a bigger problem. A signal was sent for other researchers when one with such a reputation was publicly refused funding.

carch520 profile image
carch520

Pacing some for later.

Bellated profile image
Bellated in reply to carch520

Joining that club tomorrow.......

readerlist profile image
readerlist

Defining a separate spectrum of ME versus CFS as Leonard Jason suggests is deja vu all over again with how the waters were muddied with the Oxford Criteria research applied in treating ME ( CG93.3 ) a neurological illness.

rocketronnie profile image
rocketronnie in reply to readerlist

Simplifying a complex disease boundaries is ok for researchers and useless for clinical settings that let people fall through the cracks.

Most important time for getting treatment is the first three years and very few have a diagnosis until things have gone wrong obviously later than ideal.

Taking a CFS group and treating as the same until they develop full blown ME is harmful for patients and health service budgets.

Theresa60 profile image
Theresa60

Whetted my appetite for further investigation of some antivirals that were news to me.

Jonesbones profile image
Jonesbones in reply to Theresa60

Hope in new drugs when most of what we take is off label.

You may also like...

Severe Myalgic Encephalomyelitis

forgotten http://www.meresearch.org.uk/our-research/ongoing-studies/severely-affected-me-patients/

A young girl with severe M.E

-not seeing her daughters condition as a real illness and they won't provide her with a wheelchair,...

Canary in a Coal Mine

of several remarkable people living with a Myalgic Encephalomyelitis (\\"Chronic Fatigue...

Mitochondrial Depletion

ould-underly-energy-problems-in-chronic-fatigue-syndrome/

ME/CFS Similarity With MS

familiar story on the way medically unexplained chronic illness is treat.