Act Up for M.E.

[Peter-J]

Myalgic encephalomyelitis (ME) is a debilitating, neuroimmune disease affecting an estimated one million men, women and children in the U.S. It has been described as the “Hidden Plague,” “Polio-like” and a “non HIV/AIDS” disease. Most Americans have never heard of it. Why? ME lacks prominence because the government hasn't taken this disease seriously. In the 1980s, the government renamed the disease the trivializing and belittling name "chronic fatigue syndrome." Federal research funding has been at the bottom of the barrel for decades.

meadvocacy.org/act_up_for_m...

[Ian123]

Ellen Wright Clayton suggested that such action was overdue at the IOM renaming as SEID launch in February, the new name might lack popular support but raising the profile of a hidden disease is obviously much better supported.

theargusreport.com/students...

[SophiaG in reply to Ian123]

Students have my thanks for an act of kindness.

[Seascape]

Flowers in empty wheelchairs a poignant voice for sufferers so ill they can't take part representatives must carry the message for all of us.

With you in spirit my friends