National Institute for health and Care Excellence developing a series of national clinical guidelines to secure consistent, high quality, evidence based care for patients using the National Health Service

Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): Diagnosis and management of CFS/ME in adults and children

Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): Diagnosis and management of CFS/ME in adults and children

Specialist Care:

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  • Downloaded the pdf document from the "Specialist Care" that covers the pathway that should be followed by the named medical staff managing a case. Given NHS cutbacks I would be very surprised if this happens anywhere in the UK, this may be a blessing for the children involved because adults can say no thank you, when given GET (graded exercise therapy) a choice sick children that are sent for treatment because of missing school routinely do not have.

    Why GET is still practised for a condition that deteriorates with maximal exercise as doctors should be guided by "if you can do no good the least is do no harm" where neglect of care is common piling abuse onto the charge, fuels the outrage felt amongst those able to make their voice heard.

  • IOM name it after getting sick on exercise DOH

  • That one had slipped by me in the tsunami of media.

    thanks :-)

  • Blood test for other things then ok you have cfs a nurse will take a class with some physio and talk about how you feel. Missed three classes ill then by myself with a gp busy and not understanding when I am ill cannot get appointment in 2 weeks.

  • NICE multimorbidity guidelines ‘due next year’


    On 2nd November 1972 the London Medical Group held a closed meeting at which aversion “therapy” was promoted as a “cure” for homosexuality. The “therapy” was drug-induced nausea whilst the “patient” had to view homosexual acts (preferably live). The aim of this so-called “re-conditioning” was to “change the emotions where the person cannot change them of his own free will”. According to one of the speakers, psychologist Hans Eysenck, aversion “therapy” was “only undertaken where it is of the patients’ own choice”. Another speaker, Dr Isaac Marks, Senior Lecturer and Consultant Psychiatrist at the Maudsley Hospital, justified such abuse as being “in society’s interest”. The proponents of this “therapy” were praised by the chairman of the meeting for their “outstanding contributions to psychology” and were referred to as “these great men”. People who underwent this “therapy” ended up as chronically depressed asexual vegetables ( ).

    On 28th April 2008, another closed medical meeting was held in London, this time at the Royal Society of Medicine; once again the intention was to promote another currently faddish “therapy” as a “cure” for another so-called “aberrant” disorder. This time it was not about homosexuality but about myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS), which the psychiatrists to whom the RSM offered a platform prefer to call “CFS/ME” and claim that it is a behavioural disorder. These psychiatrists (known as the Wessely School) lump ME/CFS together with on-going tiredness or chronic “fatigue” such as is seen in depression and anxiety states, even though ME/CFS has been formally classified as a neurological disorder by the World Health Organisation since 1969 and the WHO has confirmed in writing that what these psychiatrists are doing is not permitted under the WHO taxonomic principles.

    February 2009. High Court legal challenge of NICE guidelines brought the 2011 PACE trial as further proof that psychiatry was the method of choice in treatment.

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