Hello, I just joined the PSP Association this morning. My wife, son and I take care of my mother and father in our home. Dad was diagnosed about 3 years ago with PSP and we are learning about the disease as we go. We live in Greenfield, Indiana in the USA but I found this site to be very well organized and it looks as though we are all in the same boat regardless of our locations. I also thought that it may be beneficial to communicate with others around the world to see if there are differences in treatments or experiences. The more we learn and anticipate the next hurdle, the easier it is to deal with it and be prepared. Our thoughts and prayers go out to everyone affected by this disease.
Bret
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Bret
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Welcome! The PSP community is small but I have found it to be incredibly supportive. It is especially reassuring to know that there are others out there who share the same struggles and experiences.
you have done the right thing by joining th psp assoc and this site
eveyrone is veryvs upportive on a world iwde basis
I am in England but u r in the USA bt that iiis not important
U r ight too the more we learn form each othe rabout the diseaase (I have PSPPP0 Bbut cna sitll type (albeit v dyslexically) and cna sitll go out - lesso on my own now as even with iia 4 wheeel frame i am likely to ffreeze and fall
(fwds nearly always ) nut wear some great knee pads used by americans for break dancingi and available in the uk
so there r always things which cna be done to alleviate symptoms
Hi Bret Welcome to our little family it makes no difference where you are we all understand i am in Ireland my husband has CBD he is in a wonderful nursing home now has just had a kidney infection which took a lot out of him but he is getting back on track it is such a cruel illeness Mary E
Welcome! I cannot imagine how I would have coped without this site. I care for my husband who has PSP. He was diagnosed 18 months ago but there were lots of signs well before that. Everyone on here knows how difficult it can get so you have definitely found the best place for information, advice and help.
I am sure you must be aware by now that PSP seems to affect people in slightly different ways, but by joining the PSPA you will always be certain to find an answer to any questions you may have.
Love and best wishes to your dad and tell him he is not alone. We are thinking of you all and including you in our prayers.
Welcome to the site Bret! Sorry you have to deal with this incidious disease. I live in Canada where there is little or no help for. PSP patients and their caregivers. I am grateful I found this site because everyone here understands and are quick to respond when you need advice or anything! Great group of people and very supportive.
Welcome to the PSP "family"! Sorry you have to be here but you'll find everyone so kind, helpful and supportive. If you read back through the posts you'll realise that it's a great place to come for advice or just to let off a bit of steam!!
im sorry to here about your father.the only thing prolong your father life is excerces, excerces.please read all my emails to learnd about protection isreal zehavi
Welcome to the site. my dad has had PSP for about 3 years too - we help my mum to care for him. it's an awful disease isn't it - I struggle each day to find answers, but it's very helpful talking to others in the same situation. Hope you're getting by ok - or as well as can be expected.
Glad you've been able to join the site. We're all here to support eachother and I'm sure I speak for everyone when I say, don't hesitate to contact us.
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