Changes often lead to reflective moments and I have found myself in reflective mood over the last couple of days. I still haven't quite processed all my thoughts so am not sure how coherent this will be.
I've been wondering if, in our desire to keep our loved ones safe, we actually contribute to their disability. We try and minimise risk, eliminate all hazards and cover every eventuality but risk is a part of life and surely they have as much right to take a risk as any of us do? It isn't comfortable for us to see them taking the risk, especially when we are not sure that they have fully understood the nature of that risk and the possible consequences. We have only their best interests at heart but are we taking something from them? Are we too quick to install another assistive device because it will make their (our?) life easier?
As a result of a blog post on this website I have also been pondering the issue of communication and information processing. I know that PSP slows down information processing and affects speech and need to remember that I need to slow down too. I need to allow time for processing and conversation, going at Mum's speed not my own even if it takes much longer. It is all too easy to get frustrated and to speak on behalf of, or act on behalf of the person because of the pressure of time. I get angry when I hear people talking to Mum as if she were a child or worse as if she were not there but know I am guilty of doing the same from time to time.
I am going to resolve to try and enable rather than disable Mum and to give her time so that her voice can be heard.