I have applied for cc for my sister who is in a nursing home. We have been assessed by the social worker and cc nurse back in June. Promised an answer within 3/4 weeks. We are still waiting for an answer after one cancelled appointment, meanwhile my sister's condition has got worse. I have been advised to collect all information of her present condition and behaviour to present to the powers that be WHEN we get the appointment for a decision. Why should we have to struggle like this to get what is needed for those struck down by this dreadful disease. There is money out there. It took 5 months to get the Nursing Needs Care allowance for my sister. It makes our job as family, carers doubly frustrating knowing the sufferer is entitled to this money but you have to be practically on your death bed to get it. Sorry about this - it makes me so angry when I see how much is wasted on other things in this country. We have enough to cope with watching our loved ones suffer without having to fight for help, support, essential equipment and money. I will now get off my soap box and try to think beautiful thoughts!!