'Appears to be PSP' - Actually a *positive* thing and a call to action and no I am not insane

[blazyb]

It has taken a week to cry and regroup - now I am centered around my meaning, purpose and am hopefully back in the game dealing with what 'Appears to be PSP' fightingparkinsonss.com/202...

[Sharsuk]

Loved your article. Have forwarded it to my husband. We both have decided to accept the situation positively and focus on mental well-being.

Regards,

Usha

[Machoupa]

Hi, i don't even know if you will get this, as i am hopeless with technology.How do i get into yr blog, is that what it's called.

My brother, aged 84 this mth has PSP, only diagnosed maybe 3/4 yrs ago.

You are very young, i so love yr attitude.

I believe being positive is prob worth more than all the different coloured pills put to gether.

My brother is like a walking pharmacy.

All the best

Sheelagh/ Machoupa

[Machoupa]

Ah, hidden genius...😊I managed to find all you have written.

Fair play to you.

I am never comfortabe writing to a group, while i am only addressing one particular person.

Is there a way one can write secretly to just one individual?

I don't think i have anything to offer to people with PSP except Light, Compassion, Practise of loving kindness and prayers, being on the fringes of it myself.

Blessings

Sheelagh

[blazyb in reply to Machoupa]

thank you for you very kind comment - thank you for the prayers

[Leosta]

Blessings and strength to you on your journey. Your positivity is amazing. 💚

[daddyt]

Hi Ben,

Subject: Raising Awareness for PSP

Hi Ben,

Maintaining a positive outlook is essential when facing PSP (as another Tim would say, “please stay positive”).

Eleven years ago, like you, I realized that alongside preserving my mental and physical well-being in my battle with PSP, I needed to channel my time and passion into a new purpose. That purpose is raising awareness for PSP and advocating for improved outcomes for those affected by atypical Parkinsonism—PSP, CBD, MSA, and DLB. More broadly, I want to show that a diagnosis does not mean life stops; rather, life continues to provide opportunities to contribute, to enjoy, and to make a difference.

If you are looking for ways to support better outcomes for patients and caregivers, I encourage you to visit :

pspawareness.com/?srsltid=A...

Best,

Tim

[blazyb in reply to daddyt]

This looks fantastic - I will give this a thorough review

[Machoupa in reply to daddyt]

Hi TimThanks very much for getting me on to that website you recommended to

Ben, it looks very interesting

Best Wishes

Sheelagh