Things to do for PSP – sing a PSP country ... - PSP Association

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Things to do for PSP – sing a PSP country song (badly!)

Richard33 profile image
25 Replies

A bit of fun for a good cause. You have to watch the video - sorry!

youtu.be/sTjJA8bBIY8

We have Tim Brown (Daddyt on this site) to thank – he has done so much with his PSP Chronicles books and his Ice Cream Challenge and he recorded his original version some time ago. I then foolishly said I would give it a go….

The main thing is that Ruth and I had fun doing it. The two daughters are doing a half marathon in May to raise money for PSPA and I thought this might help. But notice how they are too embarrassed to appear on video with their father!

Hope it brings a smile to your face – something we all need on this long hard journey….

There is absolutely no need to donate – we all have more than enough on our hands. But if you do if only to prevent a repeat performance the link is justgiving.com/page/couch-21k

Love to you all,

Richard🙂

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Richard33 profile image
Richard33
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25 Replies
AliBee1 profile image
AliBee1

Thank you Richard. It brought a smile to my face. So glad that you and Ruth enjoyed doing it. I think Tim is an inspiration to everyone so I agree with you. All the best AliBee x

Richard33 profile image
Richard33 in reply toAliBee1

We did enjoy it and it was good to hear from Tim below (posting as pspchronicles). I did it for him really!

Richard 🙂

Bergenser profile image
Bergenser

I'll be rewatching this until I learn it. Thank you so much, the smile lasts a long time 😀

Richard33 profile image
Richard33 in reply toBergenser

Bergenser,

It was fun doing it and you will be glad to know I do not normally perform in public!

Richard 🙂

Bergenser profile image
Bergenser in reply toRichard33

My husband enjoyed it too - tried to sing along even if he didn't know the words or the melody - I think he was especially impressed with the girls' singing - do thank them from him. 😃

Richard33 profile image
Richard33 in reply toBergenser

I will thank them. But really I think they could have made more of an effort in joining in! 🤣🤣 All credit to Roxy - she did a great job editing it. These young people so clever!

Richard 🙂

pspchronicles profile image
pspchronicles

You killed it, Richard. Absolutely LOVE IT! Ruth was wonderful and your girls as background vocals. I could respond to your message... somehow I lost my account? To you as well Sarah.

Richard33 profile image
Richard33 in reply topspchronicles

Tim / daddyt

I am sorry it took so long. But it is managing to raise a smile (and a bit of money). Everybody praises the lyrics - obviously like the original song a bit sad despite the rousing tune (or slighty out of tune.....). Thank you so much for sending them to me.

Richard 🙂

daddyt profile image
daddyt in reply toRichard33

It was well worth the wait. LOVED IT! I think there's about four parodies you'll have to get work on it's getting some traction on FB😉

Richard33 profile image
Richard33 in reply todaddyt

Tim,

People will pay money not to have to have another performance🤣🤣!!! I am so glad you liked it and it is good to raise a smile.

Richard 🙂

pspchronicles profile image
pspchronicles in reply toRichard33

And raise a smile, it did. I wore one from ear to ear. Maybe people will pay to have another performance,

Tim 😆

45purple profile image
45purple

Well done Richard, your lovely wife and daughters. Good luck for the the Half Marathon next month. Donation done 💜💜

Richard33 profile image
Richard33 in reply to45purple

That is so kind. I am glad that I am not the one doing the running...

Richard🙂

Leosta profile image
Leosta

Wonderful ! Thank you for doing this. Ruth certainly enjoyed it.I had a big smile and then I was in tears watching Ruth's expression which reminded me of my husband's own. Wasn't expecting that.

Anyway good luck to your daughters for the marathon. God bless you all. 🙏

Richard33 profile image
Richard33 in reply toLeosta

Leosta,

It is such horrible disease and you know first hand that we are fighting a losing battle sadly. It was good to make Ruth laugh and even better if it can raise a smile with others at my pretty tuneless performance!

Richard 🙂

daddyt profile image
daddyt

I think in addition to the "Amazing" award, you, Ruth and the girls deserve a Grammy.

Tim

Richard33 profile image
Richard33 in reply todaddyt

Tim,

Strangely no one asked me to bring my guitar to the award giving.....😂

Hope you are doing ok. Moving into autumn here now, so will be hunkering down for the long evenings with a beer or two.

Richard 🙂

pspchronicles profile image
pspchronicles in reply toRichard33

Hi Richard. There's nothing strange about that. The Tillard Four is an undiscovered talent waiting in the wings. You need more air time. Symptoms By The Numbers gained much traction when the PSPA used it on Worldwide Rare Disease Day in 2022. It's autumn here, too, and there is a great opportunity on those long nights to stretch that beer to three. For myself, I've experienced more progression, but I'm still ahead of the disease and still advocating for PSP-CBD awareness. Stay tuned... and not just your guitar. The ALS Ice Bucket Challenge will be just a splash compared to the wave of PSP-CBD awareness coming soon.

Tim

Richard33 profile image
Richard33 in reply topspchronicles

Tim,

Sorry to hear things are progressing.....It is amazing what you are achieving while being dogged by this disease. I will check out that song - not one I know. Carry on all this great work you are doing - we just need our Ice Bucket moment to get the word out there.!!! Richard 🙂

daddyt profile image
daddyt

Remember when I said, 'Stay tuned?' We're about to make waves for PSP-CBD awareness.

FOR IMMEDIATE RELEASE

Coleen Cunningham Foundation (CCF) Launches Global $10,000 Monthly AdWords Campaign to Boost PSP Awareness

October 15, 2024 - The Coleen Cunningham Foundation (CCF) is excited to announce the upcoming launch of a worldwide digital awareness campaign for Progressive Supranuclear Palsy (PSP), thanks to a generous Google AdWords grant providing $10,000 per month. This initiative marks a significant milestone in the fight against PSP, a rare neurodegenerative disorder currently lacking effective treatments or a cure.

With the campaign in its final stages of development, we are poised to bring unprecedented visibility to PSP. This campaign aims to educate the public, foster a global community of support, and drive research for those affected by PSP and related diseases.

A Collaborative Effort

This pivotal campaign has been made possible through the dedication of CCF’s Advocacy Committee, with heartfelt thanks to Tim, Peter, Rachel, Bhavana, Kate, and Laura. Their commitment to increasing awareness and research for PSP has been the backbone of this project.

Special gratitude is extended to Megan and Sara from Prosperwell in the UK, who have volunteered their time and expertise in digital marketing to set up our Google AdWords campaigns. Their invaluable guidance ensures we maximize the reach and impact of this initiative.

Goals of the Campaign

- Raise Awareness: By utilizing Google's extensive network, our goal is to put PSP on the map, enhancing understanding of this condition, its impact, and the urgent need for research.

- Encourage Research: We anticipate that this increased awareness will lead to greater interest and funding for research into treatments and, ultimately, a cure for PSP.

- Support and Community: To offer those affected by PSP a sense of community through increased online visibility and engagement, providing resources, support, and respite care options.

Looking Forward

The Coleen Cunningham Foundation is optimistic that this campaign will represent a turning point for PSP awareness and research. We believe that through increased digital presence, we can accelerate the journey towards finding effective treatments and a potential cure.

Stay tuned for the official launch date of the campaign, and join us in our mission to spotlight PSP. Together, we can make a profound difference.

For more information, to get involved, or to support the campaign, please visit our website or contact the Coleen Cunningham Foundation.

Contact:

Coleen Cunningham Foundation

Email: CCF@PSPAWARENESS.COM

Website: pspawareness.com

Tim

Richard33 profile image
Richard33 in reply todaddyt

Tim,

That sounds great and should really get PSP into people's heads. Well done you!

Richard 👏🙂

pspchronicles profile image
pspchronicles in reply toRichard33

It's more than just me Richard. Now, about that video... We would love to see something from you, Ruth, and the girls, if you like. It doesn't involve singing😆Here's the link - healthunlocked.com/redirect... Check out Faces and Voices in the top banner for a sample video. PS... I think you can nail Symptoms By the Numbers, a parody of Heartaches by the Numbers😉

Tim

Richard33 profile image
Richard33 in reply topspchronicles

I think I may have something that daughter Roxy did a few years back when Ruth could still speak. I will try to dig it out.....

Richard 🙂

Richard33 profile image
Richard33 in reply topspchronicles

Tim ,

Video that Roxy did is 85MB - too big for email. I have asked CCF if there is another way to send it. It is sad but good.

Richard 🙂

daddyt profile image
daddyt in reply toRichard33

I'm sure there is a way. We'll leave it to the techies.Tim

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