Hello everyone. It's not often I post here, however I read lots of the posts and take comfort in this community. My Mum was diagnosed with PSP in 2018. She now lives in full time nursing care with very poor speech, severe lack of mobility, poor eyesight and a PEG feed. This weekend was a new 'first'. I brought Mum home to my house to enjoy Easter Sunday with the family. She sat in the armchair and fell asleep, deeply. A couple of hours later she was still sleeping and when I tried to wake her up, she didn't stir. I did everything I could without hurting her to try and get her awake. After 10 minutes or so she started to come round, squeezing my hand when I asked her if she could hear me. It took another 5 minutes for her to open her eyes. Eventually she woke up although she was very vacant and sleepy still. When I got her back to her care home, the nurse took her blood pressure and measured oxygen in her blood. All normal, even though she was still very quiet (she normally 'talks' a lot although nothing much makes sense anymore). She went to bed and slept all night. The next day, she was back to herself, 'talking' and alert with her wicked sense of humour back and laughing (which sounds like howling crying these days!) . Has anyone else experienced what I've described? It really made me panic and was so unusual for Mum, although we are rapidly getting more concerned about her mental capacity. Is this just another 'next stage' of this horrible disease?
Thank you for reading, please share your own experiences in the comments.
Nicola, Surrey UK