CHC success…thank you PSPA

[Joanne19]

My husband, Philip, has had PSP for at least 7 years but has declined considerably in the last year as this horrendous disease has gripped most of his body. It’s been a long struggle as in November he contracted a UTI and sepsis and was in hospital for several weeks, and is now in a care setting. Needless to say this has been traumatic for all the family.

I applied for CHC funding in January and yesterday was given the fantastic news that we have been successful. I’m in no doubt that this would not have happened but for the PSPA support materials on CHC which I used to frame discussion of the criteria. Every point was referenced to an appendix of medical evidence and my own personal diary extracts and I made sure that everyone at the panel had a copy. Also, we had a wonderful social worker who, not having come across PSP actually took the time to use my materials and to research the condition using the PSP website.

I’m so grateful and relieved to be awarded support and want to send a huge thank you to the PSPA for the help they offer.

[Millidog]

Hi Joanne19, Thank you for sharing and many congratulations in securing CHC funding, its hard work but as you say taking the time to research the process, keeping a diary and documenting evidence is critical and can lead to successful outcome. Having a professional onside too is a great help. I hope you can now secure the quality care you need - when you discuss with the case worker who will contact you, dont just accept the hours initially offered, consider what you really need and ask for more. I found saying "thats great, thank you but its not enough" a few times helped secure much more. Also keep recording the evidence as I found at the initial 3 month review the preparation and documentation needed was much the same as the initial assessment. Warm Wishes Milli dog

[Joanne19 in reply to Millidog]

Hi Millidog. Thank you for the advice on going forward, I’ll certainly keep it in mind.