Amazing progress

[NicolaD15]

hi all - since my mum came out of hospital end of August I never thought she would walk again - with her PSP being accelerated by 4 weeks in bed.

I feared the worse & we prepared for her being bed bound thereafter.

Our local authority have been supportive with visits from SALT, dietitian etc. but the main thing that has had huge impact is the physiotherapist!! He has been amazing with my mum & even got her outside & sitting in the car today. Just thought I’d post this to say you’ve got to really push for as much help as you can get… I know it’s only a brief positive window in this horrible PSP journey but to see mum smiling again is so precious & has given her such a boost. Nx

[Bergenser]

Thank you for sharing such a positive update! 🌻We found neuro-physio worked wonders after my husband had been immobilised for 6 weeks + with a fractured heel bone. She told him at the first visit in October that she would have him walking by Christmas and she was right. We've continued - different person who is equally great - still an hour a week to maintain mobility and prevent falls. I believe he feels motivated by being challenged - and having someone who expects him to achieve things that seem out of reach. Long may it continue 🌞

[Purrlie in reply to Bergenser]

Hello NicolaD15,

Such good news to share about your Mum's response to physio. No matter how long it lasts, it does lift the spirit!

I am certain that my husband stayed on his feet, improved his balance and gait, had a more positive outlook, all because we saw our wonderful kinesiologist/athletic therapist (yes, we did laugh about the athletic bit!) often twice a week for four years before PSP took him from us. We did not have the PSP diagnosis during that time, we were just attempting to deal with and alleviate what seemed to be unconnected, chronic issues of back pain, stooped posture, stiffness, apparent muscle weakness. And the therapy helped with all of that.

Hoping your Mum continues to respond to the therapy, all best wishes and a big hug to her and your family. Purrlie

[NicolaD15 in reply to Purrlie]

Thanks for your wishes 🙏 Glad to hear your husband was able to stay positive for a while at least 😊 I know it means so much to mum that she’s still able to walk - even tiny shuffling steps.

[Zerachiel]

Hi, I am glad your mum has regained some if her mobility.

Similarly, my wife had one infection after another earlier this year including pneumonia, the stepping up of symptoms was frightening to see, we were warned by a Neurologist that she may not regain all that she had lost and it would take a long time to get to her new 'base level'. I believe we had reached that point at the beginning of September. Sadly her balance hasn't returned and she fell breaking her hip and clavicle.

We too have a wonderful Community Physio who has helped throughout this year to get her walking and now we can get out the house again; she has to be assisted all the time but we can get out and enjoy life again.