very rapid decline

[Suncitywest]

about two days ago my partner suddenly stopped being able to swallow or communicate. Tonight she has rolled into a foetal position and if I try to move her her face screws up in pain. I will phone my GP on Monday but it is pointless phoning 999 as she has already made the decision she doesn’t want any invasive interventions or resuscitation. Is it possible to have this awful disease to have progressed at this lightening speed?

[easterncedar]

That’s not a usual progression. I’d say that such sudden changes are often a sign of a UTI. That said, the treatment, with antibiotics, might not bring her back all the way to where she was. So sorry you and she are having to go through this.

[Suncitywest in reply to easterncedar]

thank you for your input.

[Soul-girl]

that’s exactly what happened to my mum, rolled on her side, when carers tried to deal with her she screamed in pain, when they tried to put her in her back, dr said it was nerve pain ?? I’m sorry to say my mum passed away about 10 days after this started, it was incredibly fast and so unexpected as her decline had been so gradual before, does yr partner have a palliative care nurse? I would call them, they were so invaluable, take care of yourself, sending big hugs xx

[Suncitywest in reply to Soul-girl]

Thank so much for your answer. At the moment waiting for the out of hours GP, which has already been7hrs. We have palliative carer but without a prescription for the proper medicine they can do nothing.

[Stephanielayell82 in reply to Suncitywest]

Palliative can get the doctor available to you for prescription if your partner is in distress which it sounds like she is they can make her comfortable. We use to chase product after product to help. It felt like as soon as we found a product it wouldn't work any longer. Best wishes!

[Suncitywest in reply to Stephanielayell82]

Thank you.

[Aprilfool20]

I we nt from walking and able to toilet myself to where I amtoday virtually bedridden!so yes it can come onsudenly andftewrds they told me id had aspiration pneumonia brought on by food lodging in my lungs,get.it checked out I also have trouble swallowing and in hospital they put me on a puréed diet which was all dried up and I couldn’t even eat that.Thankfully I was only in a week,long enough though

[Suncitywest in reply to Aprilfool20]

Thank you for your reply. Take care of yourself.

[Zibo]

please let us know how is partner doing now. Sending a huge virtual hug. How painful and distressing this PSP is for everyone )o:

[Suncitywest in reply to Zibo]

Thank you. I now have palliative nurses in and all the drugs necessary to keep her out of pain. She’s very peaceful and still gives me a smile. This is a horrible disease but it’s a huge comfort being able to talk about it on this site.

[Soul-girl in reply to Suncitywest]

sending you lots of love and great big hugs xxx