Any PSP groups in Leicester UK?

[Banta123]

Good morning all.

My dad is in his 3rd year of living with PSP.

Obviously we have seen a massive decline

in his physical and mental state.

I would really like to take him out and be social with other people like him and show him another world and that hes not alone.

we are in Leicester UK

Thanks

[AJK2001]

Hi BantaAs well as a local support group, your local hospice might offer some support. Ours runs a day centre once a week for people with neurological conditions and there were 3 ladies there when my Mum went, who all had PSP. One week they ran a little session with the 3 of them to "talk" about how they felt and their frustrations. Mum found the whole thing very helpful. She felt the staff understood as well as meeting other PSPers.

[Banta123 in reply to AJK2001]

Thank you so very much! I will definitely look into this and im glad it helped your mum.

[Zerachiel]

Hi, I have posted this to others looking for a PSP group local to them; you may want to look into any local Parkinson's support groups, we attend one near us, they are very supportive and Parkinson's share's many symptoms as PSP. My wife finds she can relax and enjoy the meetings when she is with others that have similar issues.

parkinsons.org.uk/informati...

[timbowPSP]

So sorry to hear his condition. When I was diagnosed 4 yrs ago I was 76 and horrified by the negativity. ..... "f'k it, there's gotta be a better way". Since then I have ben on a strict diet, taking supplements, with special therapies and exercises, etc. I am going down, but only slowly. We are all different, and there are 8 variants of PSP. I've kept a record of what I've done to help, and happy to send you. Best if you tell me ur email please so I dont splatter it, 3 pages, all over here!

[timbowPSP]

Meant to add my best wishes to you. Tim Willcocks.