Help in preventing UTIs

[crwban]

My wife has been living with familial FTD for the last 10 years and was diagnosed with PSP 2 years ago.

For the last 18 months she has been plagued with UTIs from various bacteria. These are having a profound effect on the quality of her life. She is already coping with 2 serious conditions and is immobile, double incontinent, unable to speak and thus unable to communicate when she is not feeling well etc.

We have tried various low dose antibiotics for longer periods, which might work for a couple of months, and the suddenly she will experience more than one type of UTI for 5 or 6 weeks with hardly a break between infections.

Any advice on how to prevent/lessen the frequency of UTIs would be gratefully received.

Many thanks,

Dafydd

[LuisRodicioRodicio]

Hi crwban!I'm sorry PSP / FTD have entered your family.

I am not a phisicyan

What I am going to present about UTIs I have discussed with my medical relatives.

With a resistant or recurrent infection:

1) An "antibiogram" is essential.

2) Apply the most appropriate antibiotic according with the antibiogram in sufficient doses and time to kill the bacteria effectively and safely.

3) If "double incontinent" means losses on urine and bowles the problem is particularly difficult on women because without a quick and effective cleaning the contamination of the urinary tract is very easy.

4) In a case of rebellious UTIs it is advisable to consult a phisicyan who specializes in UTIs.

The suggestions of my "chat" colleagues are wise and based on their different experiences on PSP. In my case they have been very helpful.

These kind of diseases like PSP manifest theyself in a similar but different way in each patient. The participants in chats like this offer practices and solutions to learn from, and through the "trial and error" method, achieve a quality of life with interesting moments despite everything.

.

During the 8.5 years in which we were living with PSP I have been collecting our own experiences, symptoms and solutions and that of other members of the chat to offer some notes as a suggestion to PSP/CBD patients and caregivers. The mentioned notes are made with good will and with the best technical criteria that I could contribute, thinking above all in the support of the caregivers

Wishing the best for you and your family and if the notes-document with our experiences and our information are of your interest, do not hesitate to let me know to send it by the private mail of this chat.

Hug and luck.

Luis

[crwban in reply to LuisRodicioRodicio]

Thanks for the information

[Martina_MP]

The specialists who should be consulted if they haven’t seen her yet are an infectious disease specialist and a urologist. If she has a catheter in place that is a more difficult situation. An obstruction, such as a kidney stone or narrowing in the ureters should be ruled out. Ultrasound might be the easiest test in her situation. Meanwhile, you could try giving her at least one cup of a cranberry juice drink daily.