Seizures& PSP

[Moojuice219]

If a person has PSP, do they have mini seizures through this illness? If so, how do these seizures look? My husband was shaking and non-responsive through the weekend but seemed to get better today.

[Hidden]

Yes, seizures can happen. They may go on for a while then stop. Let his doctor or nurse know what is happening.

I would also suggest getting home hospice involved. Tell his doctor you want him evaluated at home by hospice. I think he would qualify.

[Moojuice219 in reply to Hidden]

Thank you for your reply. This is something that is not on the information sheets.

[Hidden in reply to Moojuice219]

You may be told hospice is only for the last 6 months of life. That isn’t true.

Hospice eligibility requirements for neurological conditions:

Structural/functional impairments

Impaired mental function

Impaired sensory function and pain

Impaired neuromusculoskeletal and movement functions

Impaired communication

Impaired mobility

Self-care deficit

Activity limitations

Comorbid and secondary conditions also contribute to a terminal prognosis.

[SewBears]

I’m sorry that your husband is going through this. I agree with what Jeff mentioned. His doctor may be able to provide a medication that could help prevent seizures from happening. I also like the idea of getting hospice involved.

My husband has had a few seizures but they have been short in duration and I know that one was caused from a medication withdrawal. Has anything changed recently with your husband’s meds or is he on anything that poses side effects?

I hope that you can get it sorted and please let us know how you’re both getting on.

❤️ SewBears

[Moojuice219 in reply to SewBears]

Thank you for your reply.

[Kellsbelles]

I don’t know if this is the same, but my dad has what I think are seizures where he jerks backwards all of a sudden (sitting and standing) and freezes / trembles for a while after. Is that similar to your husband?

[Moojuice219 in reply to Kellsbelles]

The trembling is what was observed twice in three days.

[allotmentartist]

Moojuice my husband was admitted to hospital on boxing day he was in hospital for four days they had to wait for the neuro to get back on duty he said it was a psp episode was shaking from head to foot and out of it for two days took a couple of weeks to get back to normal x

[Moojuice219 in reply to allotmentartist]

Thank you for your response. I had no idea this could happen. The doctor did not give me this information.

[allotmentartist in reply to Moojuice219]

We didn't either it was a bit of a shock but psp is always bringing up surprises.

[Scratchie]

I am so sorry for you and your husband.

[Moojuice219]

Thank you