Shaking body

[Y2U4]

My husband was pushing on the crook of his arm and then his body shook rapidly for a couple of seconds. Has anyone seen this happen?

[Dadshelper]

I've never read of a sort of pressure point causing that. It may be the 2 are unrelated, he just happened to be pressing there when he had body shakes.

Ron

[SewBears]

Yes, my husband’s body shakes frequently. It’s not always his entire body, sometimes it’s just one area that does a weird shake/spasm thing. He’ll uncontrollably lift one or both of his arms and the arms wiggle quickly and oddly. He can shake the entire car when he does this. I ask him if he’s aware of what’s happening after an episode and he tells me no. I think it’s muscle spasms and I’m hoping that they aren’t triggered by mini seizures 🤷‍♀️ I’m hoping that it’ll happen during one of our doctor sessions so that I can provide proof of what I’m talking about.

Crazy life right now 😱

❤️ I SewBears

[Hidden in reply to SewBears]

I hope it happens in the doctor's office too... seeing is believing. It will help the doctor & staff have a better understanding of what you are trying to explain. Sometimes they just don't get it. Sending hugs... Granni B

[Dadshelper in reply to SewBears]

If you have a smart phone, video record when it happens so you can show the doctor. If a picture is worth a thousand words, well video must be better

Ron

[SewBears in reply to Dadshelper]

I’ll try to capture it on video. It happens spontaneously and it’s over quickly. Thanks for the idea!

[Y2U4 in reply to Dadshelper]

That’s a great idea. Thanks.

[racinlady]

The only time I saw something like that was when my husband would get really agitated with me because I couldn't understand what he was trying to say.

Pat

[daddyt]

It sounds like myoclonus. I experienced it often early in my diagnosis... still do but not as much. I like Ron's idea about capturing in on phone video.

Tim

[Bipa]

My husband flails at least once a week. First time it happened I called an ambulance. I thought he was having a seizure. It was at our son’s house in Oakville, Ont.. He was checked out - cat scans, ECG, etc. and sent home. I recall first time visits to the a Neurologist and he asked me whether my husband flails . He told me it happens to PSP patients.

I have videos that I taped. Wish I knew how to share it

I do not think there is much one can do just try to calm them down as it is happening.

[Y2U4]

Good to know. Thank you for sharing.