Every morning I’m accosted by the “normal for me now” PSP punishment. Grasping for the bed-rail is a warm-up exercise. The bobble wobble walk to the bathroom will have me failing a roadside sobriety check. It has become safer to squat on the toilet to pee than to stand, I’m less likely to have a mess to clean. My mind wandered I can hear an announcement over the P.A. system; clean-up in en suite number one. Worse than that (what could be?), the toilet seat could fall...
Written by
daddyt
To view profiles and participate in discussions please or .
You obviously read about as far as I read this morning. Brilliant. I laughed by page 5. He has a lovely way of describing things. Nigel would have so appreciated it. AliBee x
Oh I do apologise so very sincerely. I had not connected book with daddyt. I will blame it on the stinking cough/cold I still have. I just love your description of things and was laughing on page 4 with regards to your legs masqurading as tree stumps. Nigel had CBD but he was more annoyed about his legs than anything else and the voice telling you that you have bed rails made me laugh out loud.
I felt very envious of you seeing the bald eagle, page 73, and for you thanking God for it. Nigel so loved birds and when we had to move in 2018 to a bungalow in town we had french windows looking out on an apple tree and he would spend ours in his riser recliner chair watching them. We no longer had the raptors in the field behind us as in our old house but subsequently had many more smaller garden birds and they make one believe in the glory of God. Nature has a habit of doing that.
I use words to express how I am feeling and I am so enjoying your way of using words too.
I am writing down the number of all the pages that have special meaning for me to share as I know these diseases are awful but if Nigel and I had not had humour and faith we would not have got through it together as well as we did.
Love AliBee
I wrote the enclosed at the beginning of my second poetry book after my 1st husband died when I was 47.
Chris said that he envied my love of words.
I'm so lucky I can use them like the flight of birds,
To take my feelings and set them free,
To float on the thermals leaving me free to find me.
That's something, at the moment, that is hard to do,
For whatever I'm doing, erratic feelings come too.
Beautifully written. God's signature is everywhere... we only need eyes to see. Do share those pages that hold special meaning for you, I think it's helpful for everyone to talk about this dis-ease. There can be light in all the darkness and... it's okay to be able laugh. It's better than crying. My motto - when you can't win, you can at least grin.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Beyond... The PSP Chronicles
how far could dad be into the psp
