How are you all? I don't know how the time is flying by since March when I lost my J. Life is very lonely, very hard being all alone when everything has gone. I have had to cope with so much loss and to top it all my home is up for sale unless I pay up a lump sum to save it. I have been so mentally wiped out and trying to find employment at the same time. Going for interviews at 51 years of age and then being turned down its all very sole destroying. I would love to hear from everyone and I am so sorry when I read the continuing struggles of those still coping with PSP. When I think of the dreadful suffering it breaks my heart. Love to you all.
Sue xxx
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Escada29
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Hi sue sorry to hear about your house, hopefully there is a way to keep your house. Fingers crossed you will find a job, you are still young, keep positive. It is over a year that George passed away, I miss him everyday. Me too when you read other peoples posts that are still struggling with PSP, brings it all back, would give anything to see Georges smile again, but not with PSP, it was an horrible time in our lives, wouldn’t want him to suffer. Really feel sad for you after loosing J in March, wish I had a crystal ball and could make everything ok for you. Sending you a massive hug, always here Sue if you need to chat. I went to Cyprus for Georges memorial service in October, we also had the marble headstone done I was very happy with it. Big hugs sue stay strong xxxx Yvonne xxxxx
Sorry to hear of your continuing trails. PSP is bad enough to have gone through. I’m trying to get myself going again.
Hi Sue, sorry to hear of your struggles, as if life wasn't bad enough already. Mentally, 9 months is not a good place, bubble has well and truly gone, still very raw, but time is marching on, others seem to have forgotten.
Christmas is always a big hurdle, I had to go through, my birthday and the anniversary of Steve's death as well. I did it the only way I knew how, threw myself into the spirit of Christmas. Even worked for a bit!!! I still do, three years on. This will be the first year that I plan to be at home, always ran away the day before the anniversary to somewhere warm.
Life will improve for you, or at least shall I say, you will get use to feeling as you do, so it doesn't feel so bad.
It is heartbreaking reading about everyone still struggling with PSP, but I feel if any of my hard learnt knowledge, gives someone a tiny bit of relief, then I have to stay here. Plus I can't let my family go, not sure if I ever will now, you are all mean too much to me.
So sorry you are having such a tough time Sue as if losing the one you love isn't bad enough you risk losing your home and gave to seek work, that's a big ask. Hoping that things work out for you OK after the rough journey of PSP, this disease has a lot to answer for and the loneliness you are left to struggle with isn't something that just disappears overnight.
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