REM sleep disorder may lead to untimely de... - PSP Association

PSP Association

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REM sleep disorder may lead to untimely death of brain cells.

10 Replies

Thought I'd share this, sounds about right to me. My dad has PSP and has always had trouble sleeping.

naturalnews.com/038930_slee...

10 Replies
NannaB profile image
NannaB

Oh dear....so have I.

X

in reply to NannaB

Yeah same here, I'm starting to wonder if I have a weak swallowing mechanism too. It's something I pondered decades before my dad got sick.

NannaB profile image
NannaB in reply to

Sorry, I have a weird sense of humour. I do have trouble sleeping but I'm not worrying about what I will or will not develop in the future.

How is your dad doing? I admire your interest and determination to find something to help him but I told our sons the best thing for their dad is their time, doing things together, making happy memories, helping him do things he has always wanted to do, and laughing a lot which I think is the best medicine (for both of us) until something else is found.

Unfortunately he is now past the stage of doing anything for himself but he does still do a weak humming laugh when something funny happens or he is told something funny so we try to make him laugh on days when he is awake and responsive.

Your dad is very fortunate to have such a supportive son. It's a horrible disease and hard on everyone. I hope you are still managing to do things you like doing, it's a long road ahead and we all need distractions to keep us strong.

X

in reply to NannaB

No need for an apology :)

After his fall at new year I notice a significant change. He now shuffles where he used to walk. Seems to be falling asleep alot. Struggles to articulate what he's trying to say. He did recover somewhat from the fall but now seems to have slipped back a little bit. He is taking 1 solpadine and 1 equates brand sleep aid at night. He seems drowsy during the day though. I wonder if he gets up and takes more in the middle of the night.

abirke profile image
abirke

Totally unrelated to your message, but why does your Post name say Mndovrmnky and when I click it open, it's the name, "Hidden"? Thanks for the info. I do appreciate what NannaB says and I hope you are living each day to the fullest with your dad. But I must also admit that we need your input on this site...thank you

AVB

jzygirl profile image
jzygirl in reply to abirke

I think you will find he has left the group. Pm me for details Janexx

abirke profile image
abirke

Oh I'm sorry to hear that. He was ok...just young with energy enough to look EVERYWHERE for a cure...... Pm for details? what does Pm mean.....?

thanks for letting me know,

AVB

jzygirl profile image
jzygirl in reply to abirke

Private message me

mthteach profile image
mthteach

how do you do private message on here

easterncedar profile image
easterncedar in reply to mthteach

Touch your name, and the drop down has "messages". It's pretty easy after that to pick your recipient. Let me know if that doesn't work. This site isn't quite perfect, but it's really quite wonderful. Peace, ec

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