Mum with PSP.: After weeks of eating just a... - PSP Association

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Mum with PSP.

Kaylewis profile image
14 Replies

After weeks of eating just a few teaspoons here and there mums swollow has now stopped working. All food and fluids have been withdrawn and a syringe driver started. She smiled at the nurse as she told her she had come to near the end of her disease and that she was going to make sure she is more comfortable.

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Kaylewis profile image
Kaylewis
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14 Replies
dollydott profile image
dollydott

Dear Kay

My heart goes out to you .

It sounds like your dear mum has had enough.

Sending you both my love I hope you have lots of support.

Lynda xx

JodiP profile image
JodiP

Is a syringe driver the same as a feeding tube? I am so new to this terrible disease

kenh1 profile image
kenh1 in reply toJodiP

No. My wife is on both. Syringe driver delivers medication by injection. Feeding tube delivers liquid food into the stomach. My wife's drugs are to control symptoms of the disease and not yet end of life care. Best wishes. Ken.

doglington profile image
doglington

I hope she has a peaceful passing. All you can do is the most important thing - that she knows she is loved.

Big hug from Jean xx

Bargiepat profile image
Bargiepat

Only tears thinking of you both.......

XXX

Dadshelper profile image
Dadshelper

It's a sad time but take comfort knowing your mom will be at rest soon. I just went through this same stage with dad in Sept. I truely hope her passing is as peaceful as my father's was.

Ron

Tippyleaf profile image
Tippyleaf

I hope your mom stays calm and comfortable and you see a few more smiles

Sending lots of love and a big hug

Tippy

raincitygirl profile image
raincitygirl

Hugs for this hard hard time.

XXXX

Anne G.

lindaD_ profile image
lindaD_

Bless her may she soon be free of this awful disease

agustintp profile image
agustintp

Please always remember the good things with her.

Hiking13 profile image
Hiking13

Thinking of you both PSP is so cruel and I hope she smiles a little more for you

Love Sarahxxx

Jeas72 profile image
Jeas72

My heart goes out to you both at this very difficult time 💔xx

Sarah1972 profile image
Sarah1972

Hold on to all your wonderful memories xxx

Servena03 profile image
Servena03

What we as carers have to cope with too, unimaginable, but remember you cared for her because you love her, she does know that, may she be released from this decease peacefully, bless you all, remember were all thinking of you and sending loads of hugs and wishes, Be brave, xxxxx

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