CHC funding .... almost accepted 😁 - PSP Association

PSP Association

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CHC funding .... almost accepted 😁

Sarah1972 profile image
12 Replies

Just had my assessment to see what they can provide Mum. They are putting forward 5 nights and 1 hour per day for washing, dressing and administering medication. I’m delighted and almost feel like I have my life back and can start been a daughter again very soon 😁 xx

Thanks to everyone who gave me advice and support. You’re all amazing xx

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Sarah1972 profile image
Sarah1972
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12 Replies
doglington profile image
doglington

Well done !!

love, Jean x

Yvonneandgeorge profile image
Yvonneandgeorge in reply to doglington

Well done lovely lady xxxx

Spiralsparkle profile image
Spiralsparkle

Fab news

Katiebow profile image
Katiebow

Great news for you all Sarah, much deserved as it is for all PSP and associated diseases.

Love Kate xx

Duffers profile image
Duffers

Well done sarah. I know from experience it wasn't easy. Good luck. Marie

kenh1 profile image
kenh1

Brilliant! & hope for many other users of this site.

God bless! Ken

Zeberdee profile image
Zeberdee

Great news .. brilliant. Jxx

Kevin_1 profile image
Kevin_1

Great :)

Now it goes in front of the funding panel. They cannot change the recommendation...

But... When you get it - Don't forget to go back to them if things deteriorate and you need more support. When you get it you are through the door for all care to be provided. It is not simply an approval of that care plan. They expect deterioration and they step up the care as needed.

Well done. You cannot imagine how happy I am when I read someone is going to get CHC... It's a lifeline. :)

(Stressful of what?)

:)

Sarah1972 profile image
Sarah1972 in reply to Kevin_1

Thanks Kevin. I was told there was a limit which is £680 the cost of a nursing home + 40%

Hopefully what she has offered will be agreed x

Kevin_1 profile image
Kevin_1 in reply to Sarah1972

Hi

No, legally there is no limit. The National Service Framework makes it very clear that they must meet all needs. I wouldn't pick a fight on it. Just accept what they give and as the needs increase just keep going back and telling them. When they refuse to meet a need is the time to get active.

Well that's my take on it.

xx

Sarah1972 profile image
Sarah1972 in reply to Kevin_1

Brilliant...yet again!!

Will keep that in mind xx

Tippyleaf profile image
Tippyleaf

So pleased to hear this news, it must be a huge relief.

I am still waiting to hear the outcome of my husbands application so your “success’ gives me hope too.

Love Tippy xx

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