Freedom: My beloved Larry, lost his battle... - PSP Association

PSP Association

9,658 members11,568 posts

Freedom

Dicampbell profile image
52 Replies

My beloved Larry, lost his battle with PSP on 3/29/18. I miss him more that I could have ever imagined. He died painfree and surrounded by his children and me. I plan to see him again one day and we will dance until the sun comes up.

Written by
Dicampbell profile image
Dicampbell
To view profiles and participate in discussions please or .
52 Replies
Marie_14 profile image
Marie_14

Dicampbell,

What a lovely photo of your loved one. He had a nice death surrounded by those who loved him too. I love your idea of meeting him again and dancing until the sun comes up. A lovely thought. So very sorry for your loss. My husband died last year. Life is strange after all the years of being together.

Take care of yourself. We are still here for you you know? Getting used to being alone is hard too.

Marie x

Dicampbell profile image
Dicampbell in reply toMarie_14

Thank you Marie and I am so sorry about your husband as well. 😞

Helen119 profile image
Helen119

So sorry for your loss, keep dreaming of dancing till the sun comes up

Love and hugs

Helen xx

Blots profile image
Blots

So sorry, but it’s good that he was free of pain and surrounded by his family.

Heady profile image
Heady

So sorry that Larry has passed away. May he rest in peace, finally free from this evil disease.

Now it's time for you to use those hard learnt caring skills on yourself. Only do what has to be done. The rest can wait until you are ready.

Take care, it's still one day at a time.

Lots of love

Anne

Dicampbell profile image
Dicampbell in reply toHeady

Thanks Heady. I appreciate your wisdom. ❤️

daffodil48 profile image
daffodil48

I am so sorry for your loss. I can only imagine what you are going through. Hope you can take comfort that he is now free of this disease.

Dicampbell

Sounds like your husband had a peaceful passing,I know that does not help take the hurt away. (((Hugs)))

May your heart heal with time.

Dee

Kevin_1 profile image
Kevin_1

Hi Diana

I'm so pleased Larry is free. Wonderful you were all with him to the end.

Dancing through the night. What a lovely thing to wait for.

Warmly

Kevin

Satt2015 profile image
Satt2015

Sending my most sincerest condolences to you and your family x

Bargiepat profile image
Bargiepat

Reading your post reminded me of this song.......

So sorry you have lost the man you loved.

youtube.com/watch?v=TPqZs7V...

Dicampbell profile image
Dicampbell in reply toBargiepat

Thank you Bargiepat. It is beautiful. You are in my prayers too.

DenB profile image
DenB in reply toDicampbell

Beautiful song, Pat.....thankyou for posting it.

XxDenise

Bargiepat profile image
Bargiepat in reply toDenB

I have just realized you were just 10 years old when this was top of the 'Hit parade'

.........

DenB profile image
DenB in reply toBargiepat

I think I will go and listen to more of Roy Orbison, his words and music are so poignant . Thanks for reminding me of him.

Dx

DenB profile image
DenB in reply toDicampbell

So sorry that you lost your lovely man. And I think I should have sent my last post to Bargiepat. But never mind, wasn't it a beautiful song? X D

JantheNana profile image
JantheNana in reply toDicampbell

That song was spot on.My beloved Don,who passed away last July,has visited me several times in dreams. I hope yours will too! It was comforting.

Marie_14 profile image
Marie_14 in reply toBargiepat

Patrick

That was one of Garry's favourite songs! He wasn't into pop songs but he did like Roy Orbison. A great song and singer.

Love to you for thinking of posting it to Di.

Marie x

NannaB profile image
NannaB

I’m so sorry your beloved has left you but as you say, hopefully one day you’ll meet again and what a reunion that will be.

Now, for you a new chapter begins and I hope and pray that when the time is right you will find there can be a good life after PSP. It’s your time now. Do what you want to do, not what others want you to do.

Very best wishes.

XxxX

Dicampbell profile image
Dicampbell in reply toNannaB

Thank you Nanna. I appreciate this advice. Best to you as well. ❤️

raincitygirl profile image
raincitygirl

Dear Di; I am sorry for your great loss. Thank you for sharing that his end was peaceful. That knowledge is a gift to all of us :-)

Hugs to you in this sad time and hope for your healing 🙏✨🌼

XXX Anne G.

Dicampbell profile image
Dicampbell in reply toraincitygirl

Thanks Anne! I am so sorry you and your husband are going through this. If you have any questions, I am here for you. 🙏

aliciamq profile image
aliciamq

🥀

Zeberdee profile image
Zeberdee

So sorry for your loss and I understand how you feel having lost my hubby in December. Life is very different now and it’s one day at a time. My very best wishes to you. Jxx

amrittsk profile image
amrittsk

How long he had psp

Dicampbell profile image
Dicampbell in reply toamrittsk

7 years from 1st signs until death. 3 years after his PSP dx. He followed the steps of PSP to the letter. Had he not had a DNR I am sure he would have lived longer. But that was not what he wanted. So no feeding tube. Hospice was wonderful and kept him comfortable his last horrendous imagined week. Best to you! ❤️

AliBee1 profile image
AliBee1

What a lovely photo. I love the idea of you meeting up with him again and dancing till the sun comes up. Hang on to that during the bleak days.

Hugs Ali B xx

Dicampbell profile image
Dicampbell in reply toAliBee1

I am counting on it Ali! Let’s all meet up when we get there. A big PSP group dancing all night. No wheelchairs or walkers allowed. ❤️

Allan924 profile image
Allan924

Hi Di

I am so sorry for your loss. Condolences from Barry and Kim (Allan924)

Dicampbell profile image
Dicampbell in reply toAllan924

Thank you Barry and Kim. Very much.

Beads0122 profile image
Beads0122

I am so sorry for you loss, but glad that you have the hope of future dancing. Thank you for sharing the photo. It is good some see some normalcy in times of this cruel disease. Prayers to you and your family,

Bobby

Zeberdee profile image
Zeberdee

Yes I do dream about my hubby.....some mornings I feel him kiss me goodbye before he went to work....very strange because he had been retired for some years. Each morning to his picture I tell him what I shall do, what the weather is like and that I love and miss him desperately. Even now I get tearful days and cannot believe I have to carry on without him. Please talk about your husband to anyone remembering all the good times you shared and if the tears fall let them it does help. Thinking of you. Jxx

Dicampbell profile image
Dicampbell in reply toZeberdee

Thanks Zeberdee. Thinking of you as well. Please, stay in touch. ❤️

Zeberdee profile image
Zeberdee in reply toDicampbell

I will ... that would be good .... Jxx

Dicampbell profile image
Dicampbell

Thanks Bobby. When we first heard PSP we had no idea what lurked ahead. 💔

johns65 profile image
johns65

So sorry for your loss. It is with great hope that we will see our husbands again where they will be free of PSP and we will dance a happy dance with them. We lost my husband on March 9, 2018, so I know how you are feeling. Take care and here is a hug for you. Joyce from Minnesota

Dicampbell profile image
Dicampbell in reply tojohns65

And a big hug to you Joyce from Maryland. So sorry. Sorry for all of us !

ketchupman profile image
ketchupman

Wonderful picture and wonderful vision of what is to come. He is at peace and no longer battling this horrible disease. May God comfort you during this difficult time. It’s been 21 months since the passing of my bride and it still hurts. Not as bad as those initial days, but there is still mental pain of losing someone you loved and cared for so intensively during their last years of life.

Ketchupman

Dicampbell profile image
Dicampbell in reply toketchupman

Very nice reply. Thank you and I am so sorry about you losing your love.

A big hug.

Luis

Mikey12345 profile image
Mikey12345

So very sorry for your loss. Thank you for sharing his final moments with us. It gives me hope, looking forward to peace and acceptance for both of us.

Can not imagine the pain with the loss. I mourn my husband every night as I leave his facility and I'm sure the final loss is worse.

Bless you and I pray for peace for you. You know he is there already.

Hugs, Liz

Dicampbell profile image
Dicampbell in reply toMikey12345

Liz, I hope you have access to Hospice. During the last week the RN came daily and adjusted his meds. For me it seemed like the end came very quickly. Just two weeks earlier I was planning on how to get him to the beach for a few days. He was in a nursing facility as well. He stopped eating and drinking, became non-responsive and passed 5 days later. Hugs to you. It is a brutal disease.

Mikey12345 profile image
Mikey12345 in reply toDicampbell

We do have access to hospice. He has questioned stopping eating and drinking and the effects of that.

Thanks for your reply. 🙏🙏💕

Ratcliffe profile image
Ratcliffe

Hello Di,

I'm sorry to hear your news that your man has died. It is a comfort that he had a good death, with the family around.

You need to look after yourself now, and get yourself ready for the all night dancing in the future 👍

Hugs, at this unhappy time.

Derek

Dicampbell profile image
Dicampbell in reply toRatcliffe

Ahh. Derek, you made me laugh. First laugh in 2 weeks. Thank you!

Tttp profile image
Tttp

Di, so very for your Larry, the dreaded disease is now over with for him, thankfully he went in peace. Take care of yourself. Nettie

Dicampbell profile image
Dicampbell in reply toTttp

Thank you Nettie.

Martha_k_uk profile image
Martha_k_uk

Diana,

I thought I had replies to this but maybe that was FB. Thank you for sharing this beautiful photograph of your beloved Larry.

It is an impossible situation but take comfort from the fact that he is no longer suffering.

Much love x

Boobe profile image
Boobe

My condolence for your loss. I haven't posted anything here yet. Just reading everyone else's posts and I wish I could hug your pain away.

Tippyleaf profile image
Tippyleaf

So sorry for your loss. Love the photo Larry looked like a man who liked the good things in life a cat and a nice glass of wine. I am so ‘relieved’ for you that his passing was probably as good as it gets.

Be kind to yourself now you must be exhausted. As others have said one day at a time

Take care sending love and hugs

Tippy

Dicampbell profile image
Dicampbell in reply toTippyleaf

Thank you so much Tippy.

Artteach10 profile image
Artteach10

What a nice picture of your dear Larry. So sorry for your loss, but it seems like the good memories stay with us in spite of everything. You will dance again in his arms.

Not what you're looking for?

You may also like...

Six hours of freedom !!

Today I had six glorious hours of freedom . As some of you may know I am an antique...
Georgepa profile image

Heartbroken

Today I said goodbye to Craig, my wonderful, brave, kind beautiful husband took his last breath...
Unicorn2022 profile image

Dan’s brother passed away. Do I tell him?

Dans brother passed away from cancer yesterday. I took a Dan to see him twice last month in a care...

Any advice at this stage please.

John is now at the stage where he can't support any part of his body, I am struggling with...
Servena03 profile image

Happy delusions

I am struggling with this one. While understanding what dad is saying is difficult, every visit...
tlovins profile image

Moderation team

HelenPSPA profile image
HelenPSPAAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.