My beloved Larry, lost his battle with PSP on 3/29/18. I miss him more that I could have ever imagined. He died painfree and surrounded by his children and me. I plan to see him again one day and we will dance until the sun comes up.
Freedom: My beloved Larry, lost his battle... - PSP Association
Freedom
Dicampbell,
What a lovely photo of your loved one. He had a nice death surrounded by those who loved him too. I love your idea of meeting him again and dancing until the sun comes up. A lovely thought. So very sorry for your loss. My husband died last year. Life is strange after all the years of being together.
Take care of yourself. We are still here for you you know? Getting used to being alone is hard too.
Marie x
So sorry, but it’s good that he was free of pain and surrounded by his family.
So sorry that Larry has passed away. May he rest in peace, finally free from this evil disease.
Now it's time for you to use those hard learnt caring skills on yourself. Only do what has to be done. The rest can wait until you are ready.
Take care, it's still one day at a time.
Lots of love
Anne
I am so sorry for your loss. I can only imagine what you are going through. Hope you can take comfort that he is now free of this disease.
Dicampbell
Sounds like your husband had a peaceful passing,I know that does not help take the hurt away. (((Hugs)))
May your heart heal with time.
Dee
Hi Diana
I'm so pleased Larry is free. Wonderful you were all with him to the end.
Dancing through the night. What a lovely thing to wait for.
Warmly
Kevin
Sending my most sincerest condolences to you and your family x
Reading your post reminded me of this song.......
So sorry you have lost the man you loved.
youtube.com/watch?v=TPqZs7V...
Thank you Bargiepat. It is beautiful. You are in my prayers too.
So sorry that you lost your lovely man. And I think I should have sent my last post to Bargiepat. But never mind, wasn't it a beautiful song? X D
I’m so sorry your beloved has left you but as you say, hopefully one day you’ll meet again and what a reunion that will be.
Now, for you a new chapter begins and I hope and pray that when the time is right you will find there can be a good life after PSP. It’s your time now. Do what you want to do, not what others want you to do.
Very best wishes.
XxxX
Dear Di; I am sorry for your great loss. Thank you for sharing that his end was peaceful. That knowledge is a gift to all of us
Hugs to you in this sad time and hope for your healing 🙏✨🌼
XXX Anne G.
So sorry for your loss and I understand how you feel having lost my hubby in December. Life is very different now and it’s one day at a time. My very best wishes to you. Jxx
How long he had psp
7 years from 1st signs until death. 3 years after his PSP dx. He followed the steps of PSP to the letter. Had he not had a DNR I am sure he would have lived longer. But that was not what he wanted. So no feeding tube. Hospice was wonderful and kept him comfortable his last horrendous imagined week. Best to you! ❤️
What a lovely photo. I love the idea of you meeting up with him again and dancing till the sun comes up. Hang on to that during the bleak days.
Hugs Ali B xx
Hi Di
I am so sorry for your loss. Condolences from Barry and Kim (Allan924)
I am so sorry for you loss, but glad that you have the hope of future dancing. Thank you for sharing the photo. It is good some see some normalcy in times of this cruel disease. Prayers to you and your family,
Bobby
Yes I do dream about my hubby.....some mornings I feel him kiss me goodbye before he went to work....very strange because he had been retired for some years. Each morning to his picture I tell him what I shall do, what the weather is like and that I love and miss him desperately. Even now I get tearful days and cannot believe I have to carry on without him. Please talk about your husband to anyone remembering all the good times you shared and if the tears fall let them it does help. Thinking of you. Jxx
Thanks Bobby. When we first heard PSP we had no idea what lurked ahead. 💔
So sorry for your loss. It is with great hope that we will see our husbands again where they will be free of PSP and we will dance a happy dance with them. We lost my husband on March 9, 2018, so I know how you are feeling. Take care and here is a hug for you. Joyce from Minnesota
Wonderful picture and wonderful vision of what is to come. He is at peace and no longer battling this horrible disease. May God comfort you during this difficult time. It’s been 21 months since the passing of my bride and it still hurts. Not as bad as those initial days, but there is still mental pain of losing someone you loved and cared for so intensively during their last years of life.
Ketchupman
So very sorry for your loss. Thank you for sharing his final moments with us. It gives me hope, looking forward to peace and acceptance for both of us.
Can not imagine the pain with the loss. I mourn my husband every night as I leave his facility and I'm sure the final loss is worse.
Bless you and I pray for peace for you. You know he is there already.
Hugs, Liz
Liz, I hope you have access to Hospice. During the last week the RN came daily and adjusted his meds. For me it seemed like the end came very quickly. Just two weeks earlier I was planning on how to get him to the beach for a few days. He was in a nursing facility as well. He stopped eating and drinking, became non-responsive and passed 5 days later. Hugs to you. It is a brutal disease.
Hello Di,
I'm sorry to hear your news that your man has died. It is a comfort that he had a good death, with the family around.
You need to look after yourself now, and get yourself ready for the all night dancing in the future 👍
Hugs, at this unhappy time.
Derek
Di, so very for your Larry, the dreaded disease is now over with for him, thankfully he went in peace. Take care of yourself. Nettie
Diana,
I thought I had replies to this but maybe that was FB. Thank you for sharing this beautiful photograph of your beloved Larry.
It is an impossible situation but take comfort from the fact that he is no longer suffering.
Much love x
My condolence for your loss. I haven't posted anything here yet. Just reading everyone else's posts and I wish I could hug your pain away.
So sorry for your loss. Love the photo Larry looked like a man who liked the good things in life a cat and a nice glass of wine. I am so ‘relieved’ for you that his passing was probably as good as it gets.
Be kind to yourself now you must be exhausted. As others have said one day at a time
Take care sending love and hugs
Tippy
What a nice picture of your dear Larry. So sorry for your loss, but it seems like the good memories stay with us in spite of everything. You will dance again in his arms.