OMG!! For the second time this year, my mother is refusing to eat by keeping her mouth closed. She did the same thing around three months ago, but at that point we could see her point as she was on solids at the time, which were making her choke quite agonisingly. Now she is on thickened shakes, solid foods being a thing of the past for her.
A nurse from the PSP Society, who was present when my mum was being examined by the neurologist the other day, said that she had never seen anyone with such an advanced case of CBD. And the neurologist added that my mum’s brain scan, taken seven years ago, already showed marked signs of deterioration.
Is she becoming a miracle of science – or a victim of our success in managing conditions, rather than our ability to cure them? I think the latter.
But what I would love to know from people in a similar situation on this site is… does anyone know whether, once lost, the swallow reflex, ever returns? I feel we are now looking towards the end of the road, and am really hoping that she won’t ‘rally’ again, and have to trudge on much longer inside a life that holds so very very few pleasures or opportunities for interaction with others.
Any advice, or just plain support, very welcome. Hard times, indeed, for us all. With universal love to this community and others. Mary