My name is Chris and I'm 68yrs old. I'm a 22yr Army and Vietnam Vet. My story is below.
I'll list all these symptoms in the order they happened
I woke up the morning of 7 Dec, 2013 unable to keep my balance. No dizziness, no vertigo, I just can't keep my balance and it continues to this day. I've fallen about 6 times since this started.
Back in Feb of last year more odd symptoms started. For one if I hold my head straight and just move my eyes to the right I'll 'hear' a noise in my head and my eyes want to snap back to center. This doesn't happen if I move just my eyes to the left. I have tinnitus in my right ear but when this happens the pitch doesn't seem to change. Also around the same time I got a headache which has continued 24/7 until this day. The pain level varies from maybe a 3 to a 7 or so.
Around the beginning of last month another symptom crept up. I'll be standing still and suddenly I will involuntarily start stamping my feet as if I'm marching in place. This may last for a few seconds to maybe 15 or 20 seconds.
So far I've seen a neurologist at the VA and a civilian neurologist. Neither can figure me out. I have appointments with two more neurologists one at the end of this month and one the middle of next month. I also have an upcoming appointment in June with a neuro ophthalmologists.
The VA neurologist has tried at least five different medications for the balance loss, I've had VNG tests (show possibility of a central lesion), brain MRI, I've had physical therapy on a machine called a 'balance master' none of which have done any good. The brain MRI showed an abnormality but when I asked either of the neurologists I've seen so far both say nothing to worry about.
I also have what they've said is a 'gait disorder'. I'm 5'11" but my wife now takes bigger steps than I do.
I'm posting here just in case anyone recognizes any of these as PSP symptoms. I'm just reaching out trying to find some answers since all these issues are driving me crazy.