I asked jokingly, how does one take care of themselves. Heady came back with an answer that should be read by the young carers in this disease as well as the old ones who need reminding:
" By accepting you can't do everything. Get as much help as possible. Go out into the world, at every possible moment you can. Realise that you exist as well as your loved one, look after your own needs just as well as you do for him. Get plenty of regular exercise, if only a short walk. Eat well, don't skip meals, because you are only cooking for one and can't be bothered. Make time for yourself, even if that means putting your loved one to bed half an hour earlier. "
Accept you are not perfect. You will get things wrong on a daily basis, you will lose your temper and shout and scream.
Most of all, realise that you are doing an amazing job, your loved one is totally reliant on you and you ARE making sure he wants for nothing.
Lots of love
Thank you Heady for your words of wisdom , I just had to share this with the rest of our family here...
Lots of love back at ya darlin....how you doing, darlin?