Hey all, hope everyone is okay and not dreading another Monday ! Just thought I'd post to say that I managed to get mum a referral to see one of the PSP neurologists in the UK, we saw Dr Rowe based in Cambridge but there are several. Just wanted to say I recommend nagging for a referral to see one if possible, although we were there three hours and mum had to give blood and do cognitive tests etc (more for research than mums benefit I think) when we did get to speak albeit briefly to the professor it proved very interesting. He asked mum what he could do for her and sadly she said 'make me normal' which he said he was unable to do but did recommend a few med changes and OT referral and also mum is going back to see urologist, respiratory specialist and cardiologist ! So worth a try I think ! List of research centres in latest PSPA magazine x
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