My mum has suffered with PSP for at least six years now.
All of her food is puréed and her liquids are thickened. It's come to the point where everything she eats or drinks makes her choke, cough etc. This is making her obviously not enjoy her food and she gives up. Even when she's not eating or drinking she is coughing now. She has tablets to stop the saliva.
Mum does not want a PEG fitted and is quite adamant.
I guess she will come to the point where she won't be able to eat any longer, but I just want to know if anyone else has experienced this, and what will happen etc. If there is anything more I can do to help her eat.
I don't mind negative comments, I would rather know. That way I'm prepared.