University of Miami Study with Mannose

[msmock]

Hi. My sister was diagnosed with PSP 2 years ago. Like many of you, I have spent time searching the web for any possible thing that may help. I came across is a study done at the University of Miami in 2013 using Mannose (one of the eight essential sugars, derived from Aloe Vera). Below is a link to the interview Dr. John Lewis gave to NewsMax and a report of the study. (sorry, couldn't make the links 'hotlinks' so you will have to copy and paste into your web browzer)

LISTEN TO U of MIAMI DR LEWIS THAT DID THE STUDY--IT'S REALLY INFORMATIVE:

newsmax.com/health/Headline...

READ THE REPORT OF THE STUDY:

med.miami.edu/news/study-fi...

The study was with Alzheimers patients, but I’m hopeful that it may be something beneficial to our PSP loved ones, as well.

Thanks, Marilyn

[Baruli]

Thanks for the info Marilyn. We have begun growing the aAoe Vera plants after listening to something similar and have been giving Dad two scoops each of the fleshy part on a daily basis.. He was diagnosed with PSP a year and three months ago. Will keep you updated if the Aloe Vera consumption helps him in any way. Much love to you and your sister

[msmock in reply to Baruli]

Wow, Baruli, you are industrious. Good for you! We will be anxiously waiting to hear about your results.

I did find a few sources online. The problem is they are pricy. There is one site that sells the aloe vera powder in bulk at a better price, but I cannot speak to whether or not it is appropriate for our needs.

THIS IS WHAT THEY USED IN THE MIAMI STUDY (it notes they are coming out with an improved version):

altmedlabs.com/shop/aloe-po...

altmedlabs.com/wp-content/u...

FOUND ON AMAZON:

amazon.com/GlycoBalance-Alo...

THIS IS THE BULK ALOE VERA POWDER:

herbastat-seller.hostedbywe...

There is a company, Mannatech, that produces these products, but they are by far the most expensive.

Always eager to hear of anyone’s experience with polysaccharides, Aloe Vera, etc.

[Hidden]

Here is his ted talk from 2013

youtu.be/rOJr0sxmxGI(Not working as expected?)

[msmock in reply to Hidden]

Thank you so much for the post.

Really enjoyed hearing Dr. Lewis's comments. He obviously has a lot of confidence in the efficacy of mannose. Don't think he would do a TedTalk if he was 'iffy' about it.

If I can get my sister on a aloe vera regimen, I will keep you posted on any results.

[Christine47 in reply to Hidden]

I heard Dr. Lewis on another site where he mentioned using a product called New Eden from Wellnessquest. There is also a mention of a product called BiAloe. I haven't found any more current followup to his 2013 TED talk which I find curious except in early 2014.

Here is a more detailed article that might give more insight into the relationship in the of D-mannose and brain function. Note that it mentions salsalate in the conclusion. .Nghrnet.org/index.php/joghr/...

On the upside, D-Mannose seems to work on UTIs .

[Hidden in reply to Christine47]

Yeah, I could only find 2 vids of him. The trail is cold.

[Christine47 in reply to Hidden]

I have asked my husband's nutritionist if she is familiar with BiAloe or the APMC. I will keep you posted on what she says.