IM SURPRISED THAT SOMEONE ELSE H MSA ,I ... - PSP Association

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IM SURPRISED THAT SOMEONE ELSE H MSA ,I THINK IT'S FAR WORSE THAN ANY OF THE OTHER COUSINS....................

GenaBenedict profile image
6 Replies

THANKS JB.........., FOR SGGESTING AMANTADINE, ONCE I TOOK & H AD HALUSINATIONS. HOW DO YOU

USE CINNAMEN ? MY DR TOLD ME THAT PAPAYA IS GOOD IT HELPS W/ DIGESTION & LOT'S OF GOOD INGREDIENTS . I 'M NEW AT THIS.............. MSA SO ....... ANYONE THAT HAS ANY SUGGESTIONS ON HOW TO COPE W/ IT............... PLEASE SPEAK UP. I WAS BEGINNING TO THINK I WAS THE ONLY ONE.....BUT TWO MAKES A CROWD.................... I AM NOT A A.ONE.......... I WILL PASS ON ANY USEFUL IFORMATION THAT WILL BE HELPFUL. GENA

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GenaBenedict
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jzygirl profile image
jzygirl

From all that I have read and what I have been told about the cousins it seems that it goes parkinsons. .. ms... msa....... psp...... and then cbd.

I think the worst on the list is motor neuron. They all shit deseases and as much as I dont want Brian to have psp it could of been worse he could of got motor neuron. Hope this help. Janexx

cabbagecottage profile image
cabbagecottage in reply tojzygirl

they are all so closely related aren't they , a lot of guess work in my opinion

jzygirl profile image
jzygirl in reply tocabbagecottage

Even our neuro people say that if you have a neuro desease you become a guinea pig as far as treatment and management is concerned. And they put so many of these deseases under the parkinsons or parkinson plus umbrella. As we say we have got a short straw but it's not the shortest in the set. Janexx

peterjones profile image
peterjones in reply tojzygirl

HI JANE THATS WHATI WAS FIRST DXN WITH MOTOR NEURONE I THOUGHT MY WORLD HAD COME TO AN END

RIGHT THERE BUT 11 YEARS LATER I PROVED THEM WRONG BECAUSE I WOULD NOT BE HERE WRITING THIS EM THE NEXT STEP IS TO GET OVER THIS PSP WHICH I KNOW I HAVE GOT MATE TAKE CARE PETER JONES QUEENSLAND AUSTRALIA PSP SUFFERER

Jbpractice profile image
Jbpractice

We started using cinnamon based on a study for Parkinson's an thought it can't hurt and it might help. You may have to be careful as it may interfere with your diabetes so start off slow. Papaya is good for digestion as is mango and aloe. sciencedaily.com/releases/2...

GenaBenedict profile image
GenaBenedict

GLAD TO HEAR I HAVE COMPANY. NOT GLAD WE HAVE MSA ............JUST THAT I'M NOT ALONE.. BUT, MY PRIMARY CARER, MY ADULT DAUGHTER THINKS TAT PAPAYA WILL SOLVE ALL PROBLEMS.. HAVE TRIED TO FIND PROPER DIETS, BUT NO RESULTS WORTH READING............... GOT TO GO IF I GET ANY USEFUL INFORMATION

I WILL PASS IT TO MYO MY FELLOW . M SA FRIENDS. GENA

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