Hi everyone sorry took so long to write, I have been just beyond tired. But here are some of the things Aunt Bev Has been doing
Cognitive Testingm, blood work Spatial Cognition Testing , MRI Retinal Imaging.
Cognitive Testing ll, Cogntrive Testing lll, nurse interview, Family History (do not think bevs is from genes) Neurological exam
Blood and urine testing (going to do a gealogical testing) , Lumbar Puncture, Eye Movement testing, Cognitive Testing lV, Social Function testing, and then we had a Family meeting with all the doctors
they think she qualify for a few clinical trials, and also testing and research to find out what protine she is missing, Tomarrow we go to UC Berkely to do Emotions testing for 7 hours, and then report to UCSF hospital to do a 24 hour sleep studie and that will complete the first round we also signed papers to donate her brain when she passes doc was really impressed on how well she does for having PSP for so long but says he does not believe it is genetic, I am going to hit the bed to tired to write any more talk to you all soon hope all is well with all of you I also gave them the name of the site we all are at and told them to check in on us to see what is really going on with PSP and give them so other direction to look at with the writings you do everyday in hopes that it can give different things to look at g
good night sleep with the angels