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[edkor]

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Last Updated: Jul 15, 2014 08:57AM UTC

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[CheekyChops1973]

Hi edkor.

I just read your profile and I feel exactly the same as you ! I have supposedly got cbd and I am having a hard time excepting it. You're right it does seem as if no one cares especially in the medical profession anyway. I feel so stiff and painful down my right side at the moment and that's with levadopa which I am not sure even helps . Even went for a walk with my dog earlier to make me feel better . worked for a while then stiffness spasms and rigidity came back with a vengeance . Don't know about you but I have to keep having a word with myself to try and pull myself together . I find it excruciatingly hard when all you hear is that there Is no treatment for this horrible illness . I am in southeast England. Are you in England ?

[edkor in reply to CheekyChops1973]

No am in the USofA . But we are in the same boat . I mean it just seems like no one cares . I just finished reaming an older woman out on Facebook . She said that life dont begin until 50 . Well when I turned 50 I was in the hospital having the first of my 3 cardiac ablations ! And they all failed ! Now I am on meds. to control my heart . And how its PSP !!!Yesterday was the 1st. time I ever called 911 ! I LOVE IT !!!!!!!!!!!!!!!!!! Thanks for letting me rant a little bit .

[easterncedar in reply to edkor]

Sorry, Edkor, to see what an awful time you are having. There's nothing fair about this, is there? I hope you got the help you needed from 911. Hang in there. Easterncedar

[edkor in reply to easterncedar]

Hi easternceder , THE 2 young men were very good . I am refering to the 911 call. They calm me down . Which I think they should have done . But the problem is still there the PSP . They could not have done anything for that.Like I have said many times I NEED the PSP fixed in me cause at 53 years I feel like I have so much to live for. The darn PSP took it all away !

[easterncedar in reply to edkor]

Yes, you are way too young for this. I tell my guy all we can do is fight the symptoms as they appear and try to stick around until that breakthrough comes. Here's hoping for that day, Easterncedar