husband with cbd diagnosis

[dragon1840]

i have been reading the blogs and questions. wonderful resource. so glad to have found this site.

we are in the united states.....seeing a neurologist in Yale new Haven. just like being dropped in a rabbit hole.

some one mentioned a yahoo site. what is the name of the site

thanks everyone for the time to write and share.

dragon1840

[zjillian]

Welcome to the site. My husband and I are from the States now living in Costa Rica. My husband has PSP, 8 years. Good luck with the neurologist.

Jill

[Cathmon]

Hi,

If you go onto yahoo groups and search for cbgd_support you will find the group. Lots of good information and resources.

Wishing you all the best,

Catherine

[dragon1840 in reply to Cathmon]

thanks catherine.......

will let you know what comes of the search.

bernice

[ultramodern]

Bonjour Dragon...surely you can't breath fire?

Welcome to our world where the collective knowledge of the experts on this forum by far outweighs that of the supposed experts.

Why?

Because everyone on this site you have joined is as closely linked to PSP/CBD as anyone can get.

How?

Because each writer either has PSP or CBD or is a carer to a loved one. Husband ,wife daughter ,son,or other.

There is no better way in my mind once the verdict sorry diagnosis is made than to ask your questions...and you'll get straight answers.

Sometimes more questions than answers.

And when you don't have a question and just wish to let of steam at some injustice medical or otherwise ,you will always find a sympathetic ear!

I'm English and live in France but some of our experts are in the US and can better help you get local Info than me.

Forget the rabbit hole ...you are among friends.

With you, Dragon, in mind.

best........brian

[dragon1840 in reply to ultramodern]

thanks brian for the kind words..........i some times do breath fire. not to often tho.

we are off to see the neurologist again today. will keep the group apprised of the journey.

ciao

dragon

[Joandbear]

Welcome to the site, dragon. We are new also. After much searching and eliminating other possibilities, my sweet husband was diagnosed in la Jolla, Scripts Neuorlogical, California. He has CBD and is demonstrating progression much faster than I thought possible. He was first diagnosed June 2013, 2nd confirming diagnoses in August 2013 UNM. We live in New Mexico. so we are pretty new on this site and find it supportive, and truly informative. The drs. All seem to fall back on the old "every case is unique" and that there are no medications. Stay in touch.

[Christine47 in reply to Joandbear]

Joandbear and Dragon1840, Have you looked into Sharon Comden's protocol for CBD? It is posted on the Yahoo cbgd group, but here is a link that has been posted. It is well researched. rbluesky.com/Diet/A%20Neuro...

Best to you both,

Christine47

[Joandbear]

Thank you. Still trying to figure out yahoo, looks like an interesting site