My dad died 3 weeks ago at home from 4 year long battle with PSP.

[maddie27]

Can't believe my dad is gone, he was only 65 and suffered for so long. PSP is a evil disease which took everything from my dad, his speech, ability to swallow, his movement, everything was so hard for him. He was very prone to chest infections and took one after the other, leaving him weaker all the time. He finally couldn't do it no more and after getting his last infection he refused treatment and let the chest infection which turned into pneumonia take him. His body batteled for a week til he finally left us on 5th April 2014, with his 3 daughters and wife by his side. in a very unpleasant way, it wasn't peaceful like we were told it would be. Can't get the images out of my head and I pray to god he wasn't aware and didn't suffer. Love you so much dad xxxxx '

[jillannf6]

hi maddie

so sorry 4 yr loss and the fact aht you rdad has now goen 4m htis world

but he is nwo at peace from tjhis PSP

Not religious so no prayers btu i am thinkign fo hyour ona d yours

lol Jill

hugs and xxxxxx

[peterjones]

DEAR MADDIE 27 IM EVER SO SORRY THAT YOU LOST YOUR FATHER I DO NOT THINK

HE WOULD HAVE SUFFERED IN THE END MATE WITH THE FAMILY ALL AROUND HIM

THATS WHAT HE WOULD HAVE BEEN THNKING OF TRYING TO SOFTEN THE BLOW FOR ALL OF YOU TAKE CARE GOD BLESS YOU ALL PETER JONES QUEENSLAND AUSTRALIA PSP SUFFERER

[Sharon637]

So sorry for your loss Maddie. Love and prayers being sent to you are your family to help you cope at this very sad time. Jill and Peter have said it all and we are all here if you need to talk. Thinking of you.

[groovychick]

Maddie27, I'm so sorry Hun. My eyes are welling up as I write this as it mirrors my journey with my dad. I will never ever be able to forget that night. It wasn't peaceful at all. Dad, who was this strong rock like figure all my life, full of dignity and pride, was now struggling to breathe and had respiratory failure from the final aspiration pneumonia, and there was nothing we could do. All night me my brother and my mum held his hand till his last gasps for breathe. It's been six months now and it feels like yesterday when I close my eyes I can see it. All I can say is that in time you will be able to start remembering your real dad-the dad before PSP took its hold-and that will give you a little comfort. Not now, but in time when you are ready it will happen. I hope you can find some peace and know that your dad is in a better place now watching and protecting you as he is free of the evil PSP that controlled him for so long. Anytime you want to message me, feel free xxx

[Heady]

Much love to you Maddy

Heady

[maddie27]

Thankyou so much everyone for your kind words. Life is so unfair, im so angry with the world for this happening to my dad, he didnt deserve any of it. Every day is a constant batte to get through and is so hard. My dad was the best in the world, so loving, kind and caring. So strong and influential, he was and always will be my hero xx

[daparose]

I am so sorry for your loss Maddie, I lost my husband just five months ago and miss him everyday but I try to remember him before the cruel disease took hold of him. He sounds like a great Dad and I am sure he loved you and your family very much, PSP takes a lot of things away but it couldn't take his love away so I hope you will begin to feel better soon and remember all the happy memories you had with him, be kind to yourself.

[wifemo]

Hi Maddie -

Let's hope you can soon climb out of the awful place you are in right now.

I've found it a great help to have round me photos of my husband as I remember him when we first met and in happier times.

If you can have something pleasant to focus on, the "bad" images will be pushed further to the back of your mind. They won't disappear for ever, but the good memories will take over in time.

Thinking of you all,

Mo