I am pretty well spent. I get up 2,3 and sometimes more at night to help my hubby to the bathroom. I get up in the morning and get his meds in him, start getting ready for work, get him up and dressed and get the tube feed ready, finish getting myself ready and off to work. Homecare comes in and finishes the feed for him. and give his mid morning meds. I have 40 minutes at lunch, come home to eat and give him meds and either get him up or lie him down. Back home after work, get him his meds, get supper ready. Then every 20 minutes or half hour he needs up or down or help with something until 8:30 when he gets his bedtime meds, but he doesn't go to bed then, he wants to eat icecream, or porridge, or yogurt. It takes him a long time to do this, I'm tired because I've been up several times during the night and been at work all day. Finally by 10:30 or 11:00 he goes to bed, then I can. And it starts all over again!! I am so tired all the time I just want to cry, or go hide somewhere! Home care also comes at 2pm to administer a tube feed while I am at work. I don't know how long I can keep going like this, I know I need to take a break and get him in to respite care for a few days, how do I tell him that?? I am exhausted!!
Thanks for hearing my rant (: